Do you see a separate doctor for the osteoporosis? Have you been able to reverse it at all? You're my age, so I'm just curious what they told you regarding outlook.
Also, why didn't you try Humira?
Hi i didn't try humira because I was classed as a primary non responder to remicade (no antibodies, high therapeutic level), we even tried 10mg/kg - i think it might have worked at 30mg/kg - and since humira works by the same mechanism (tnf inhibitor) there was no point.
I'm at a university hospital which covers all areas so when we found the osteoporosis my GI doc talked to one of the bone metabolism specialists in the geriatrics department and they advised to take prolia. Because the side effects were scary I initially had some doubts and my GI doc said he could make an appointment for me to see the bone specialist if I wanted. I decided not to, and to trust my gi, because at that point I was in the hospital once a week for one reason or another and it was already enough!! They said managing with diet and lifestyle was not an option because my case was too severe and I'd actually been on calcium supplements the whole time I was on pred. I don't know yet if I reversed it because my GI doc said it changes so slowly then there's no point retesting for 2 years, which will be September next year. He did say that it should be reversible "to a large extent" although he could not guarantee 100% recovery. He also said there should be a rebound effect on stopping pred where it also improves by itself.