Hi Rocket Man,
Thanks for your questions and input.
We did not test his calprotectin for a year or so. It was 15 and then in a year 300, then in 2 months 150 (the latest one). Strangely, he did not have any visible symptoms while calprotecin was 300, but had some minor ones when 150.
Our doctor dismissed the idea of the hemorrhoid/fissure and she want us to go on Cortenemas for a week or two. I asked about
uceris foam, but this is not a standard drug according to my insurance. Nervous about
cortenemas as we tried them 2.5 years ago when tapering of prednisone. At that time it did not work much and my son got a moonface for quite some time. Last time we were far away from remission though.
We are doing the Entyvio today, few days earlier than in 6 weeks.
Never heard about
Enteragam. Even more expensive than VSL
Will do some reading. Thanks.
As for Remicade, it was 3 years ago. First dose early October, last one right before Christmas. The levels we checked, but I do not remember the numbers and dose (pretty high, I bet). At that time the doctor tried to control his UC with just Remicade, nothing else. Worked quite well for few infusions and then stopped. Looking back, I wonder if we were more successful with Remicade if we also attacked UC with some supps/enemas and 5-ASA.
Post Edited (Crazydad) : 12/19/2019 8:33:57 PM (GMT-7)