Posted 1/9/2020 12:47 AM (GMT -7)
Hey guys, posted maybe a year ago but im Always here reading yall are the best.
Not to make it long but been through the ringer trying to get it figured out, basically after failing Humira, Started Remicade in September, couple pred courses in between, maybe October an November just 2-3 times a day mostly formed, wasnt sure if it was Pred or Remicade, well into December finished my taper of 10mg towards the end with maybe a week of 5, well after i finished i am almost 100% sure my adrenal glands were out of whack, i couldnt barely move around, i had this very weird heavy feeling 90% of the day an felt terrible, blood came back an very loose with some liquid, well just Dec 17th had my first double dose of remicade, and literally one week ago today he gave me 2 more month of pred starting at 40, but the CRAZY just 6 days into this pred dose starting yesterday an today have had one just one fully formed stool an feel amazing, when i finished my taper is there a chance that it actually WASNT my UC roaring back due to the illness, or maybe the taper was a little to fast an possibly the remicade IS working, thats really what im not sure at ALL if its doing anything, could i go in 6 days to almost a pre UC type feeling? Im wondering if my adrenal glands an body caused the flare an not UC, i am desperate for this Remicade to work but i am now 20 days after my first double dose. Blood test 3 weeks ago were great, no Cdiff, but my Calprotectin was 360 or so but that was when i was at my worst after the pred taper. Just find it hard to believe im switched so quick an am hopeful this taper will bring me to first full remission since diagnosis 1.5 years ago, any opinions would help as my DR is kinda far an be kinda just helped me over the phone as he never knows exactly whats working either. Thank you