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what can i do with ny iron irritation?

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Ulcerative Colitis
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Hambo88
Regular Member
Joined : Feb 2018
Posts : 115
Posted 1/11/2020 11:37 AM (GMT -7)
my iron level is very low ...appeox 8 -9..i feel it too...i wozld like lie in the bed i can not focus long time i am always tired so on...

i tried many iron supplement...realy...fluids, more kind if tablets...but always they caused me diarrhea and bleeding..i tried to eat meals which contains iron but tgey also caused me bleeding and diarhea...

my colitis recently is bot to bad but not perfect..my crp is 10-12 usually...sometimes i have random bleeding...

So what can i do with iron deficity? final solution i know the infusion...but there is any other method when iron does not make me bleeding? i dont know.. for example i take other pills which can balance the bad effect of iron or anything...

please help me if you can smile
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11009
Posted 1/11/2020 6:18 PM (GMT -7)
If 8-9 is your haemoglobin level, I'd go straight for an iron infusion - no iron supplement is likely to work, especially with active IBD. The infusions work much, much faster and are less likely to cause GI side effects. The only downside is they don't last forever. In my experience, one Ferinject infusion lasts me 6-12 months before I'm anaemic again. I don't take oral iron, as I know from past experience I can't tolerate it.
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 1572
Posted 1/12/2020 6:43 AM (GMT -7)
Ditto the iron infusion. Once you can get your levels back up you should be ok unless you have continuous bleeding. I felt better after the first one I had, but not completely ok and I was still in a pretty bad flare at the time so I got another infusion a couple months later. Once I got the flare under control I had all my energy back and my levels have been ok ever since.
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VanJordan
Regular Member
Joined : Dec 2019
Posts : 98
Posted 1/15/2020 4:45 PM (GMT -7)
If you have light bleeding but your hemoglobin keeps dropping, then it prob means your iron is also low. I wouldn't bother with iron pills. They take forever to work, irritate the gut, and if you're flaring they won't absorb anyway. During flares I got an iron IV at least once a month. Sometimes I even get a blood transfusion with it. I feel like a new person when I do! This disease is horribly draining on our bodies... it's amazing how much of the weakness is just blood loss.

All you can do is focus on making it to a better day, and get the different therapies you need. When I get iron, I get 300mg at a time. They have solutions with over 1000mg but I worry about that being too much. My bowels often get upset just from the 300, so I don't want to push it.

It takes about 2 weeks for iron IV to start becoming new blood, so you should start now.
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