Sorry to hear about the infusion reaction. Sounds like antibodies, did you ever get tested for those?
If antibodies were the cause, then they apply only to remicade and not others. Whether your body might similarly create antibodies against another biologic, maybe? You can start a thiopurine (azathiopurine/imuran/6-mercaptopurine) to reduce the odds. Xeljanz cannot have antibodies created against it, another alternative if you want to avoid other IV/Injectable biologics.
I did get tested but I don’t know the results. I haven’t seen my GI since the second reaction. He went to India for a month and a bit for volunteer work, which is super irritating when there’s a shortage of specialists where I live.
He wants to start me on 6mp but I haven’t started it yet. I’ve been ill with a c. diff infection and don’t want to introduce new medication while I’m unstable. I see a different GI on Monday to discuss my next drug option. I’ve already tried Entyvio and that didn’t work for me.