Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Qing Dai Anyone?

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
HealingSarah123
Regular Member
Joined : Feb 2020
Posts : 54
Posted 2/5/2020 5:16 AM (GMT -7)
Hi I’m new to this forum I’ve been suffering from UC since 2004 but mesalamine has helped put and keep me in remission with occasional flares. I had a baby almost 3 years ago and have been in a flare since my doctor has been reluctant to put me on biologics so I’ve been taking asacol while taking cortisone enemas for 2 years and every time I try to taper off the enemas I start flaring again. I also started taking imuran about a month ago but it makes me so nauseous and makes my diarrhea worse. I read about qing dai and ordered it and tried it once and it made my poop purple. Has anyone tried it? Does it work? Any information or advice would be great thanks
profile picture
Sara14
Veteran Member
Joined : Mar 2007
Posts : 6235
Posted 2/5/2020 8:10 AM (GMT -7)
Why is your doctor reluctant to put you on biologics? Imuran made me super nauseous as well. I stopped it after a month because it made my life horrible. Other people have posted here about qing dai. You can do a search in the search box in the top right corner.
profile picture
HealingSarah123
Regular Member
Joined : Feb 2020
Posts : 54
Posted 2/5/2020 11:50 AM (GMT -7)
She doesn’t like the side affects So she keeps trying to taper me off of cortisone enemas while taking asacol. But she said after imuran If it doesn’t work well try Humaira. I’ve been on azathioprine for almost a month and I’m miserable I don’t know if I should deal with it for another month or two because I heard it takes time to work but my diarrhea is worse. I’m also taking it with asacol and I read that azathioprine interacts with mesalamine?
profile picture
greenuc
Regular Member
Joined : Sep 2011
Posts : 266
Posted 2/5/2020 1:04 PM (GMT -7)
Qing Dai worked very effectively for me for about a week before I became allergic to it and got really I'll every time I took it.
profile picture
Sara14
Veteran Member
Joined : Mar 2007
Posts : 6235
Posted 2/5/2020 1:09 PM (GMT -7)
That's odd. The side effects are not any worse than those of Imuran. I stopped mine after a month. I could not live like that any longer. I had zero quality of life on that medicine. I felt like it was poison. No, it doesn't interact with mesalamine. Remicade usually works better than Humira. I would try that first unless you just really want the convenience of doing it at home.
profile picture
iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16194
Posted 2/5/2020 1:13 PM (GMT -7)
Traditional Chinease Medication (TCM) is occasionally talked about here, and Qing Dai is the one usually mentioned.

A scientific study describing Qing Dai:

"The second clinical was terminated early due to a report of a pulmonary arterial hypertension (PAH) . Hepatic (liver) issues were noted as well. In summary, based on the canonical primum non nocere (first, do no harm) medical concern, despite its potential as an anti-inflammatory drug, indigo naturalis should not be recommended because of serious adverse events, including PAH."

https://www.gastrojournal.org/article/S0016-5085(18)30160-4/fulltext
profile picture
Uniform Charlie
Veteran Member
Joined : Jul 2015
Posts : 1095
Posted 2/5/2020 4:15 PM (GMT -7)
I have looked into it as well and agree with the post above. While it may be effective, there are safety concerns due to liver problems occurring in several small studies. Some have gotten long lasting remission from it but I would not take it myself.
profile picture
HealingSarah123
Regular Member
Joined : Feb 2020
Posts : 54
Posted 2/5/2020 10:19 PM (GMT -7)
Are you on remicade or Humaira now?


Sara14 said...
That's odd. The side effects are not any worse than those of Imuran. I stopped mine after a month. I could not live like that any longer. I had zero quality of life on that medicine. I felt like it was poison. No, it doesn't interact with mesalamine. Remicade usually works better than Humira. I would try that first unless you just really want the convenience of doing it at home.

profile picture
HealingSarah123
Regular Member
Joined : Feb 2020
Posts : 54
Posted 2/5/2020 10:20 PM (GMT -7)
Good to know thank you I will update in a week it’s too early to tell now.
profile picture
Sara14
Veteran Member
Joined : Mar 2007
Posts : 6235
Posted 2/6/2020 6:45 AM (GMT -7)

HealingSarah123 said...
Are you on remicade or Humaira now?


Sara14 said...
That's odd. The side effects are not any worse than those of Imuran. I stopped mine after a month. I could not live like that any longer. I had zero quality of life on that medicine. I felt like it was poison. No, it doesn't interact with mesalamine. Remicade usually works better than Humira. I would try that first unless you just really want the convenience of doing it at home.

I'm on Humira, but it hasn't done anything so far (it's been about 12 weeks). Starting this week, I'm moving up to weekly injections to see if that works. If it doesn't work after a month, I'm switching to Stelara or Xeljanz.
✚ New Topic ✚ Reply

More On Ulcerative Colitis

Ambushed From Within: Ulcerative Colitis - The Other IBD

Ambushed From Within: Ulcerative Colitis - The Other IBD

Living With An Ostomy

Living With An Ostomy



HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter InstagramInstagram PinterestPinterest LinkedInLinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.