I'm glad you posted it, I've been thinking about biologics this morning and wondering what treatment was like even 50 years ago, they didn't have all these drugs, did they just do nothing? I am thinking about it because the longer it gets from my last infusion of Entyvio the better I feel. I spent a year and a half with horribly debilitating body pain, like have the flu all the time. When I told doctors about it they diagnosed me (without any tests I might add) with everything from fibro to depression, and gave me all sorts of prescriptions. If I'd taken any of them I'd likely be a totally drugged out zombie at this point. I am supposed to be switching to Stelara but wondering if I'd actually be better off without it. My symptoms are consistently mild to moderate. If I am continuing to see the GI and get annual colonoscopies then I think the risk profile of no meds may be less than than with yet another biologic. I have reacted badly to every single drug and I am kind of feeling maybe that is not the answer for me.
I think they just took a lot of prednisone. I have a friend whose mother (now deceased) had UC, and he said she was on prednisone a lot.
I'm kind of feeling the same way as you! Debilitating joint pain is no way to live. That's how it was when I was on Imuran -- not joint pain, but I felt so ill every day that I had zero quality of life. And now again with this dizziness thing, although it is a lot better than it was last week, I'm not having much of a life; I'm scared to even go out for a walk in case I feel faint again. I don't know if it has anything to do with my Humira, but everything else is coming back normal. I'm sure I will be back to normal soon, but it has me worrying even more about
these meds. I'm starting to think maybe just being on Uceris for a while would not be so bad for me.