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Healthcare providers with UC and COVID

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Ulcerative Colitis
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backinthesaddle
Regular Member
Joined : Jun 2015
Posts : 46
Posted 4/2/2020 10:24 PM (GMT -6)
Hello. I have had UC for 14 years and usually it’s well controlled. I’m having a few symptoms... nothing too bad, a little blood, some frequency/urgency and mild abdominal pain at times.I wouldn’t be too worried normally, but feeling more nervous because of the COVID cases. My main concern is being at higher risk for serious complications. I’m not on prednisone or any biologics. Just on Canasa. I work in healthcare but not in a hospital. I’m in more of a case management type office role but might be asked to perform hands on care if there is emergency need. I’m just worried that the information isn’t there to say whether some of us are higher risk for serious complications. I keep hearing of middle aged people dying from COVID and it’s mentioned they had an underlying condition. And I’m wondering if I should seek accommodation at work and ask not to be placed front line? Sorry for being human, but I’m afraid I will be told I’m not high risk, and then if I end up dead 💀 that they will say, “Oops, she had an underlying condition.” I am seeing people dying with NO underlying condition. I have young children and frankly, I am not eager to fall on the sword so to speak. There is a lack of PPE here and I’m scared. Anyone else feel the same?
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Uniform Charlie
Veteran Member
Joined : Jul 2015
Posts : 1096
Posted 4/3/2020 6:13 AM (GMT -6)
I am currently on the front lines as a first responder. Everyone is scared. I feel like every shift takes months off of my life due to stress but this is what I signed up for.

I don't believe you will get an accommodation but you can try. Don't put yourself in a situation that is unsafe. You have options which include walking off the job. The reality is many of us will get this virus. For every young person you see who dies there are thousands who do not. Not to minimize but you need to try to match your fear level to the amount of risk. It's not easy but I would start by no longer reading or watching news about it.
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iPoop
Forum Moderator
Joined : Aug 2012
Posts : 16208
Posted 4/3/2020 6:14 AM (GMT -6)
Mesalamine/canasa does not put you at any higher risk than the general public. As it's a topical, mild anti-inflammatory med only.
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notsosicklygirl
Forum Moderator
Joined : Dec 2008
Posts : 17767
Posted 4/3/2020 8:07 AM (GMT -6)
I agree with John about Canasa but I also agree with you that you have an underlying condition. I would probably ask if I could work from home.
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backinthesaddle
Regular Member
Joined : Jun 2015
Posts : 46
Posted 4/3/2020 8:51 AM (GMT -6)
Thanks everyone. I’m not afraid of being higher risk to contract the disease. I’m afraid of not being able to fight it off if I get it, because my immune system is already a little wacky. My elementary school aged children also both have asthma. I guess the real reason that I am terrified is that one of my work colleagues just died from COVID. She was younger than I am by a few years and had no underlying health condition. I no longer feel safe. I greatly appreciate your responses. Thank you and hope you all stay safe and well.
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3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1668
Posted 4/3/2020 9:15 AM (GMT -6)
I have no spleen and I just survived Pnuemonia and Corona Thank God I had colon removed in 18 or that might of been issue
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quincy
Elite Member
Joined : May 2003
Posts : 32626
Posted 4/3/2020 10:59 AM (GMT -6)
I suggest you up the medication game and get on oral mesalamine/ and suspension enemas since you are flaring.
q
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backinthesaddle
Regular Member
Joined : Jun 2015
Posts : 46
Posted 4/4/2020 12:57 AM (GMT -6)
Thanks everyone.
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C_G_K
Veteran Member
Joined : Dec 2006
Posts : 1414
Posted 4/4/2020 8:54 AM (GMT -6)
Thank God medicare and insurance companies are paying for telephone consults. My wife rarely has to see a patient in person, only if they are really sick and have wounds etc., that need to be looked at. Apparently there is a covid incident at a Tucson assisted living. Hopefully they can contain the damage. So far Phoenix is doing well.
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FlowersGal
Veteran Member
Joined : Feb 2017
Posts : 943
Posted 4/4/2020 9:04 AM (GMT -6)
One of our local nursing homes found Covid a few days ago. I think there's at least 8 with it right now. Waiting for the tidal wave to hit there. Thank God I don't have a family member there.
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PaperMoon85
New Member
Joined : Jan 2020
Posts : 16
Posted 4/8/2020 3:38 AM (GMT -6)
I, too, am a healthcare provider and also worried about all the unknowns with this scary new coronavirus. I just finished up an Entocort taper for a stubborn flare that wouldn’t quit and although I feel fine, who knows what things look like at a mucosal level. The other day was the first time I felt scared to be at work. I was helping triage and see who needed to be tested and suddenly the testing tents and people hacking/coughing all around just became too much. I also worry about my two young kids, one of which has asthma. This whole thing sucks!
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Michelejc
Forum Moderator
Joined : Jan 2011
Posts : 2592
Posted 4/8/2020 3:56 AM (GMT -6)

Uniform Charlie said...
I am currently on the front lines as a first responder. Everyone is scared. I feel like every shift takes months off of my life due to stress but this is what I signed up for.

I don't believe you will get an accommodation but you can try. Don't put yourself in a situation that is unsafe. You have options which include walking off the job. The reality is many of us will get this virus. For every young person you see who dies there are thousands who do not. Not to minimize but you need to try to match your fear level to the amount of risk. It's not easy but I would start by no longer reading or watching news about it.

You are one of the unsung heroes and I thank you. My niece, who is a nurse was asked to deal with the Covid unit where she works. She has a baby and she decided to do it. She quit her job but she got another job in another area of medicine.
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garyi
Veteran Member
Joined : Jun 2017
Posts : 2101
Posted 4/8/2020 10:22 AM (GMT -6)
Thanks to all the unsung heroes doing what has to be done. They define courage, and most didn't sign up for it. We're not born with courage, we can develop it, and usually don't know how strong it is until the poop hits the fan...like now.

Back to the thread topic, maybe this helps:

Mayo Clinic expert explains gastrointestinal symptoms related to COVID-19

COVID-19 most commonly presents with respiratory symptoms, including cough and shortness of breath, as well as fever. However, digestive symptoms also can occur in patients with COVID-19, and with or without respiratory symptoms. In this Q&A, Dr. Sahil Khanna, a Mayo Clinic gastroenterologist, answers questions about gastrointestinal (GI) symptoms related to COVID-19. Watch: Dr. Sahil Khanna answers questions about GI symptoms related to COVID-19.

https://apple.news/A7oNmyf7wPZGqm6CZQVUjAA
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C_G_K
Veteran Member
Joined : Dec 2006
Posts : 1414
Posted 4/8/2020 10:32 AM (GMT -6)

garyi said...
Thanks to all the unsung heroes doing what has to be done. They define courage, and most didn't sign up for it. We're not born with courage, we can develop it, and usually don't know how strong it is until the poop hits the fan...like now.

Totally agree 100%!! Uniform Charlie, Paper Moon and all the other front line healthcare workers, stay safe and thank you! U.C. is always with us like an elephant in the room, so that makes the situation even worse for you.

My wife just got a bunch of PPE and hand sanitizer yesterday. Hopefully no one is suffering from a shortage of PPE now.
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Fullcheek
New Member
Joined : Sep 2015
Posts : 6
Posted Yesterday 7:13 PM (GMT -6)
I'm on Remicade every 6 weeks and work in the hospital as a nurse educator. I have been denied accommodation by occupational health and have not been provided any PPE as I am not a patient facing nurse 100% of the time. So, I have to go to work every day and get exposed and potentially bring it home to my kids and husband. Stress is my flare trigger so you can imagine how I'm doing. Gotta love it when your organization is supportive of their compromised employees...Sorry, a little bitter today...
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HardEvidence
Regular Member
Joined : Apr 2018
Posts : 69
Posted Today 7:53 PM (GMT -6)
So disheartening to read our frontline healthcare heroes having to stress about your own wellbeing while caring for others. We are meant to be the greatest nation but can't provide basic protective gear. Hang in there and ultimately you have to put yourselves and families above all else. No shame in that. Will keep you in our prayers.
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Cougarlinz
New Member
Joined : Apr 2020
Posts : 2
Posted 4/22/2020 8:13 AM (GMT -6)

C_G_K said...
Thank God medicare and insurance companies are paying for telephone consults. My wife rarely has to see a patient in person, only if they are really sick and have wounds etc., that need to be looked at. Apparently there is a covid incident at a Tucson assisted living. Hopefully they can contain the damage. So far Phoenix is doing well.

Yes, Medicare is now covering Telehealth services related, as well as not related, to COVID-19! I just read something about it. If it is related to the virus, then I think they will waive any cost-sharing as well.
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FlowersGal
Veteran Member
Joined : Feb 2017
Posts : 943
Posted 4/22/2020 9:18 AM (GMT -6)
I just had a telehealth visit with my GP because I needed to “see” him to get a prescription refilled. I was glad to not have to go into the office and the visit and software was well coordinated. I did have to wait on hold for about 5 minutes while he finished up another call and was worried I’d somehow get disconnected but it worked.
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PaperMoon85
New Member
Joined : Jan 2020
Posts : 16
Posted 4/23/2020 1:30 AM (GMT -6)

Fullcheek said...
I'm on Remicade every 6 weeks and work in the hospital as a nurse educator. I have been denied accommodation by occupational health and have not been provided any PPE as I am not a patient facing nurse 100% of the time. So, I have to go to work every day and get exposed and potentially bring it home to my kids and husband. Stress is my flare trigger so you can imagine how I'm doing. Gotta love it when your organization is supportive of their compromised employees...Sorry, a little bitter today...

The lack of PPE is one of the worst parts of this whole thing. We’ve been having to reuse disposable surgical masks, not even N95s. I’ve instead made myself a few cloth masks that I wash as soon as I get home. I know the cloth masks are likely doing very little protection-wise but something is better than nothing. I’m normally a procedure room nurse but I’ve been floating to more urgent areas since the covid thing started. Stress seems to be a flare trigger for me as well so I totally get what you’re going through. These are trying times for sure. Stay safe out there!
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