Hey , hope all is well and everybody is staying safe.
So as the title suggests, I am in a pretty bad flare up right now and feel kind of stuck about
what to do do next considering the circumstances. I have been in contact with my doctor, but i feel like she's even unsure about
what to do. Really just looking for some insight and other opinions. Long story short , Remicade is failing me and there is no more room to up my dose or bring appointments closer together. Prior to my infusion two days ago , i was bleeding for a couple of weeks. I started Entecort enemas one week ago and was hoping for some relief in conjunction with my infusion but have not improved in the slightest. At the moment, I am bleeding quite a lot and going to the bathroom 10-15 times a day. The large majority of the time i go it is just blood and no stool, however i do have formed pieces a couple of times a day but with a good amount of blood. I am not in much pain at all like i typically am when flaring , but i am mostly eating small meals and drinking Ensure. So just wondering:
1) How much bleeding is too much? Just worried about
becoming anemic or needing a blood transfusion. I have been keeping my weight up to a decent level and have been taking vitamins but i am bleeding quite a lot.
2) I know that i will likely need Prednisone, but do not want to start it until i am home for 2 weeks following my infusion to make sure i do not have the Virus. I have a feeling my doctor will want the same thing as she is very hesitant to go the prednisone route at this time. What would you guys do?
3) I feel like i would have gone to the hospital already if not for the pandemic. I am in a hard hit city and just scared that if i go to the hospital , while flaring , to be put on solumedrol i might never come home again