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Flaring and desperate for medication advice to avoid remicade

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Ulcerative Colitis
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Posted 5/25/2020 7:28 AM (GMT -6)
Hello! I'm in my third flare since last year. I have stubborn ulcerative proctitis. I was on rectal mesalamine suppositories and Apriso for six months or so, but they didn't really help and I had all kinds of side effects. I've been on prednisone twice to kick me out of acute flares.

My doctor now wants me on remicade. I feel like there has to be some drug between mesalamine and remicade.

Can anyone recommend anything? My gastro refuses to investigate anything but remicade.
Posted 5/25/2020 7:42 AM (GMT -6)
There is imuran but tbh I would chose remicade over that. I was afraid to begin biologics but the difference between being on them versus only mesalazine was like night and day.
Posted 5/25/2020 7:48 AM (GMT -6)
Mesalamine ENEMAS are much more effective than mesalamine suppositories.
Posted 5/25/2020 11:40 AM (GMT -6)
You can try the enemas and or steroid foams or enemas. But IMHO the biologics are more effective than scary. I confess to all those fears And worries before I started entyvio. But I’m so glad I’m on it now —remission is sweet! For those of us in remission on biologics I think the biggest regret is always that we fought so hard against them and should have done it sooner. !
Posted 5/25/2020 1:30 PM (GMT -6)
Thiopurines (azathiopurine, imuran or 6MP) is between remicade and mesalamine.

Remicade has been a total game changer for me, 8 years now mostly all in a remission, with no side effects, and not sick any more than my normal.
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