Posted 7/9/2020 6:35 AM (GMT -6)
It has been awhile since I had to check in. After becoming very Prednisone dependent, I was finally able to get out of a flare and off Prednisone by starting Remicade infusions. Until 2 weeks ago, Remicade has worked like a charm. I have been completely free of Prednisone and all other meds (other than my probiotic) for more than a year. I have been able to eat like a normal human again.
A couple of weeks ago, I started drinking a collagen supplement. After about 4 days of use, I started noticing minor symptoms so I stopped immediately. I realized that the supplement contained Stevia which has never been good for me. Although I stopped drinking the collagen, it was too late.
While not in a horrible flare, I had mucus, blood and urgency. My doc put me on Budesonide capsules because he knows how dependent I get on Prednisone. (Unlike most, I LOVE Prednisone).
I have been taking Budesonide for over a week now. My question to anyone who has used Budesonide- should I still be having mucus and urgency? Food is still not my friend and I have been surviving on toast and bland soup. I know Prednisone would have stopped all of that by now.
I am scheduled for bloodwork on July 28 to check my levels for the Remicade.