Posted 7/29/2020 9:37 AM (GMT -6)
I know I’ve been posting on here pretty frequently, as you can imagine it’s been one hell of a summer for me medically.
I started on 9MG oral Uceris last Thursday for stomach pain and occasional urgency/loose stools, and have slowly been experiencing more and more trouble sleeping. Until last night, boom, total insomnia. I slept maybe an hour and a half and am totally exhausted. Today, I’m suffering with super loose and mushy diarrhea. Been going since about 4AM (because, ya know, I was awake). Im not running to the toilet super often, but when I do go, it’s like “omg how is there so much.” Anxiety has been god awful as well.
In other random instances where I’ve not slept nearly enough, I always seem to get bowel symptoms like nausea and diarrhea afterwards (albeit, not to this extent, but I’m also flaring so). I also use Canasa supps nightly, and personally find that if I don’t sleep enough, they cause a couple extra trips to the bathroom because they didn’t fully dissolve.
I’m not sure what I’m looking for from this post - maybe reassurance that this terrible D is from lack of sleep/anxiety/undissolved supp? And not from my flare suddenly being out of control? (My last scope in May showed very very minimal inflammation, so little that my doctor was going to leave it alone until I started having symptoms). I called my doctor to ask about possibly Melatonin/something similar so I actually get some sleep while on this drug - any other recs for UC friendly sleep aids appreciated!
Or maybe I just need someone to tell me it’s gonna be alright. I’m not a frequent flare-er (last one was about 2 years ago), and I’m just feeling very discouraged. It’s also my birthday this weekend, so I’m feeling super down 😔
Meds: 9MG Uceris, 3 Lialda, 3 Visbiome Probiotics, 3 Tumeric Capsules, Canasa supps nightly