Posted 8/2/2020 9:12 AM (GMT -7)
hey everybody, not sure if anyone cares or not but I just wanted to say hi. I was in remission for five years med-free (couldn't stay on mesalamine since it damaged my kidneys) and went into a bad flare while deployed to afghanistan in january. I tried budesonide, PO steroids, high dose IV steroids, and remicade x2 with no relief. I lost over 40 pounds within a matter of weeks and needed several blood transfusions. in march, I needed emergent surgery. thankfully by then I made my way from the military hospital to Cleveland Clinic. my colon was basically falling apart as they removed it, but thankfully my surgeon is awesome and was able to do it all laparoscopically. I completed step 2 of 3 for a j-pouch about 7 weeks ago and have my final surgery scheduled for september 17th. I just wanted to let anyone know that if meds are failing, surgery is not that scary of an option. I know there are those for whom it didn't work, but in a majority of cases those who receive j-pouches live very happy and problem-free lives. i'm hoping to be one of those, so far so good! the ileo isn't too bad, I just miss farting out my butthole haha. I wanted to thank those of you who gave me words of encouragement earlier this year when I was going through the worse flare of my life. I was diagnosed in 2006 and had only minor flares, so always considered myself lucky. until this happened. this is a very fickle disease, please take care of yourselves! all the best!