Struggling with SCD

Hi guys
So I’ve been trying the SCD and I’m really struggling. I never feel full and I feel like I’ve lost a lot of weight and my flare kind of got worse. I don’t know if I’m doing it right but I’m already a tiny Person and don’t want to lose more weight. Any tips?

You don't *have* to do SCD to get better.

Even if the diet would work for you, it's incredibly restrictive and the psychological fallout from following it can be massive.

I tried it for a while and became exhausted mentally and physically. It didn't put me in remission.

There is no shame in taking medication.

I lost a ton on it as well and looked sickly. Sweet potatoes and oatmeal should be fine to add in as they were added into IBD-AID diet. Check your calorie intake using MyFitnessPal app. It's not magic and if you get no response then move on after a month.

I would also like to add that I was very very dependent on hydrocortisone enemas and don’t need them anymore it’s been over a month since I’ve last used them which is a miracle considering I’ve been trying to taper off for 2 years

Hi everyone
Just an update
I met with a dietician she suggested I eat more protein and told me the diet has been life changing for many of her clients.

I’m not as “hungry” and fatigued as I was before but my UC symptoms got worse. I’m trying the diet while taking asacol and 75 mg azathioprine. But now I see more blood in my bowels. I was reading about gluten withdrawal symptoms and there’s an actual thing as the storm before the calm.
As anyone else’s symptoms gotten worse before they got better? Any advice would be helpful as I just feel like crying right now.

It’s weird because I was doing so well for about two weeks then everything just went downhill and I was following it correctly. The integrative doc told me to stop the diet and told me this shouldn’t be happening. Thank you for your kind words.

Started off with fatigue and extreme hunger. The nutritionist told me to eat more protein so I ate tons of steak and then bleeding increased and it went downhill from there. I started the cortison enemas again. Completely cut out meat, wild blueberry smoothies, manuka honey, tons of kale and Argula and well see how it goes

Lack of carbs can cause fatigue.....

I am not a big fan of the SCD diet. When I am trying to heal I do everything I can to reduce effort on the colon - so I cut out inflammatory foods like gluten, dairy, and sugar. And limit meats (NO red meat), no beans/corn/seeds/nuts/whole grains/uncooked veggies/fruits. Potatoes and rice are fine. Cooked veggies fine. I also intermittent fast - avoid foods between 8pm and 2pm next day, to give colon more time to rest/recover, but I do that year-round.

Post Edited (Krissy P) : 9/10/2020 1:27:26 PM (GMT-6)

Avocado was a saviour for me. I just checked my food log and I seemed to have done pretty well with the following:

- Eggs (fried, scrambled, or omelette)
- Sticky Rice
- Tiny bit of Soy Sauce
- Tofu
- Banana Muffins (homemade and very little sugar in the recipe, gluten-free) with peanut butter
- Homemade carrot, apple, and ginger soup
- Homemade white bread
- Sardines (I know but they are a good source of protein, omegas, and fat)
- I tried a few bites of vegan burger patties (lite life or beyond meat) and they seemed to sit ok. Lite Life ingredients are great and beyond meat have recently improved their ingredients. Good source of protein.
- Miso soup
- Chicken breast (no skin)
- Japchae with cooked veggies is a great option which I added a few weeks ago. You could have Japchae with tofu for a very well balanced, easy to digest meal, in my opinion.

The same doesn't work for everyone and you need to slowly work these things out. I kept a very detailed food log ad symptom tracker which helped a lot.

I think potatoes and rice are okay for me too but I’m so scared to try them!

I also have a tendency to weight loss. What helps me is banana smoothie. I peel 4-5 bananas, cut into slices and put into a freezer. When I take them out, I leave them for 15 minutes so they are a bit thawed and put them into a blender with Greek yogurth (sometimes I add mango). I've read that blueberries are not recommended in uc because they irritate the bowel, I personally can't eat them.

hey Sarah - i haven't taken any drugs for a while, just relying on "wise" food choices - welllll, sometimes those not so wise choices get my colon cranky - and the way back to contented colon is ........ you guessed it, wiser choices -

as we all should know by now, each and every one of us have different versions of UC and different butts - so we all respond differently to whatever fixing method we choose - for me, as mentioned above, i just focus on good stuff in - but the reality for me is, it's not an overnite success - far from it :-( my last flare (which wasn't "bad") still took about a month to resolve - not like the old days when i'd just up the butt and oral meds and maybe add a little pred - i do miss those almost immediate turnarounds -

i guess what i'm saying is, for me anyway, i am patient cuz i know from experience, that healing takes time - and that's ok as long as my expectations are in line with reality -

hang in there -

TT