Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Prep Apocalypse - Updated: It did work!

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
12
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 8/23/2020 3:36 PM (GMT -7)
I have drank the first 2 litres (of a total of 6 litres I am supposed to drink) of Colyte. I had precisely one bowel movement. I will carry on, drink the next 2 litres tomorrow... but I can see even this isn't going to work. What in the name of all that is holy what can be done of none of the preps work?????? Just not have scopes and wait for cancer to come along and finish me off?

Sorry to be so dramatic but I am in tears here. I just don't know what else can be done.
profile picture
momto2boys
Veteran Member
Joined : Jun 2013
Posts : 2348
Posted 8/23/2020 5:46 PM (GMT -7)
Honestly, I live in fear of preps not working so I always buy an emergency bottle of magnesium citrate just in case.
profile picture
quincy
Elite Member
Joined : May 2003
Posts : 32472
Posted 8/23/2020 8:26 PM (GMT -7)
With a liquid diet and 3 days worth of prep...this should work to empty your gut gradually.
How much fluids are you to be
Dont lose hope after the first day.
How is your gut feeling at this point?

q
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 8/24/2020 6:06 AM (GMT -7)
Hi Quincy, well I am carrying on in hopes that a miracle will happen. Working to empty my gut gradually... okay I will cling to that. How does it feel at this point? Well I just got up this morning so it is a bit queasy but quiet right now. I feel like a wrung out dish rag (and look like one), and have a headache. It is going to be tough to gag down the next 2L of Colyte. I barely got the first down.

This sentence got cut off "How much fluids are you going to be" - how did you intend to finish that? If it was how much fluids (aside from Colyte) are you going to be drinking, well, as much as I can get down I guess.
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 8/24/2020 6:13 AM (GMT -7)
Momto2boys, is it okay to mix preps? I mean, not obviously at the same time, but if I can't get the second batch of Colyte down this afternoon or if it doesn't work, can I drink something else right away? Ugh, don't know if I could drink another prep right after that anyway. I am worried about the batch I am supposed to drink tomorrow morning at this time.
profile picture
quincy
Elite Member
Joined : May 2003
Posts : 32472
Posted 8/24/2020 8:55 AM (GMT -7)
Hi Serenity...oopsie, yes, it was aside from the Colyte.
Maybe tylenol will help take the edge off your headache.
How are your bms today?

q
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 8/24/2020 10:17 AM (GMT -7)
It's okay to take Tylenol? I never know what is okay to take or not. I had a couple loose bms this morning, thank goodness, but it has stopped now. I am supposed to drink the next batch between 5-7 pm today. Can I start it earlier, do you think? Like maybe at 3:00? It takes so long to take effect. And takes me longer than 2 hours to drink. Then tomorrow morning is the third round at 6-8 am.
profile picture
quincy
Elite Member
Joined : May 2003
Posts : 32472
Posted 8/24/2020 11:15 AM (GMT -7)
Hi...yes no problem for Tylenol.

Good loose bms now. I would do it sooner just because...maybe compromise and do 4:00. But drink fluids during the rest of the day and evening so your gut is kept somewhat active...mix of salt and sugar fluids. Clear broth, tea with some honey, water, some do Gatorade, ugh. Liquid diet...not my thing...that's why I would die, lol.

Seems it's a "go"...yay!

q
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 8/24/2020 11:40 AM (GMT -7)
Oh don't be celebrating yet! There has been no action since the couple of bms this morning. After the loose stuff, there were chunks. And then nada. All the liquid I am drinking is coming out as regular pee. Not good.

Hey you said you were thinking of trying PegLyte next time. If you do, let me know how it goes and if it is any less horrid to drink than the Colyte.
profile picture
momto2boys
Veteran Member
Joined : Jun 2013
Posts : 2348
Posted 8/24/2020 6:35 PM (GMT -7)
Oh no, hope it is working. I don’t know if you can mix preps, but I have only ever done mirilax and mag citrate for my scopes. I suppose one could google it, but you would have to trust google. Hope things get moving soon.
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 8/26/2020 9:37 AM (GMT -7)
Okay so I completed prepapocalypse and had my scope yesterday.

Second round of Colyte: I drank it between 3-5 pm instead of 5-7. That is the only change I made to the instructions. The second round was slightly easier to drink. I think I learned a few tweaks along the way maybe.
For one thing, the straw method doesn't work for me. I used the straw for the first round, but I can drink it down faster without it. It started working shortly after I finished the 2 litres and produced several bms, but didn't go as long or as violently as when I drink Citro Mag so I was a bit puzzled but not as panicked, knowing I had a third round to go.

Third round: Had to drink it between 6-8 am yesterday morning. Got up at 5 just so I had an hour to prepare myself. It was a big tougher than Round 2, but still better than Round 1, surprisingly enough. It started working mid-round! I maybe got through 1 litre when it began. At this point I was delighted to see it was mostly amber coloured liquid. So I knew I was getting there. But oddly, again, it stopped sooner than I am used to. It stopped quite soon after I finished drinking the second litre.

I had my scope done at about 2:45 pm. I was cleaned out. Guess that means I have to do this prepapocalypse from now on! But at least it works. I was beginning to think nothing would.

The bad news: I had no active inflammation but she saw "scarring" indicating I must have inflammation that comes and goes. She wants that under control so I have to up my Mezavant sad and she is sending me for testing including CRP and Fecal calprotectin. I have to get that done this week (hope I can get my bowel movements back to normal soon enough. Haven't had a poop yet today) and then in 6 months. Interestingly, I was just reading another post where someone (was it iPoop?) mentioned that GIs don't like CRP on its own that much anymore, they also want to get Fecal calprotectin. Guess my GI is one of them.
profile picture
quincy
Elite Member
Joined : May 2003
Posts : 32472
Posted 8/26/2020 10:06 AM (GMT -7)
Congratulations! Won't be as frustrating for the next time. Yes, I will be considering PegLyte for my scope in November, although its flavour is berry 😜

Good no inflammation. My doctor never depends on CRP for inflammation. Your biopsies will tell more tho. Where is the scarring?

q
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 8/26/2020 11:17 AM (GMT -7)
She didn't say. Her office is supposed to be calling me to make a follow-up appointment, so I could ask. I am going to make a list of things to ask. What would knowing the location indicate?
profile picture
dmack1604
New Member
Joined : Jun 2014
Posts : 8
Posted 8/26/2020 11:28 AM (GMT -7)
Oh man, glad it worked. I've had three scopes done and every time I have the same panic because my body takes forever to react to the prep.
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 8/26/2020 12:22 PM (GMT -7)
I wonder why it works so slowly for some of us??? And so easy for others. The panic is real. I've failed a prep once and been sent home and had to go through it all again a couple months later.
profile picture
Old Hat
Veteran Member
Joined : Feb 2007
Posts : 5428
Posted 8/28/2020 12:08 PM (GMT -7)
Glad you got through prep, etc., Serenity. That Apocalypse effect sounds similar to my situation using Miralax + 64 oz. clear liquid (Pedialyte). It takes a while to get things going-- so I start drinking by 2 PM (1st round). RE calprotectin test: yes, my gastro, who subspecializes in IBD treatment, also began advocating that besides CRP & ESR about 6 yrs ago. Ugh! To me collecting samples is a throwback to what I endured while getting DXed in 1980, phooey! But I guess blood markers alone are still not accurate enough to determine what's really happening inside King Colon. On the Q of scar location, it's always important to pinpoint the location in colon (by specific section) of any exceptional occurrence, take polyps, for example. The location determines whether you can get by with some flex-sig monitoring rather than full scope, plus any changes needed to meds. / Old Hat (40 yrs with left-sided UC; presently in remission taking brandname Colazal)
profile picture
quincy
Elite Member
Joined : May 2003
Posts : 32472
Posted 8/28/2020 12:22 PM (GMT -7)
In addition to OH's explanation...I'm more of a c-scope only unless for quick observation with a rectoscope (which my now gi doesnt do).

Scarring determines where most of the inflammation tends to be and could also affect the workings of that area.

Yes...ask that question and get a copy of your biopsies results.

q
profile picture
straydog
Forum Moderator
Joined : Feb 2003
Posts : 18239
Posted 8/28/2020 3:34 PM (GMT -7)
SN, my gi is another one that does not do the CRP test, he says it's not reliable because a person can have inflammation from something not related. He does the faecal calprotectin because it targets the intestines only. That's odd about your lab, mine never put such a time limit like that.
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 8/28/2020 8:07 PM (GMT -7)
Thanks Quincy & OH for your comments about the location of the scarring.

Straydog, what do you mean about it being odd about my lab putting such a time limit like that. I can't remember saying anything about my lab putting a time limit? Is it when I said I am supposed to have the tests done this week? That was my GI's request. I did the blood test yesterday and submitted the fecal sample this morning. I already got the results of the blood test and the CRP didn't show any inflammation so I wonder what the fecal calprotectin will show.
profile picture
straydog
Forum Moderator
Joined : Feb 2003
Posts : 18239
Posted 8/30/2020 8:41 AM (GMT -7)
SN, sorry, I got you confused with another member that had posted about a lab giving patients a time limit to get their sample to the lab.

Hopefully you will get good results on the rest of your tests.
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 9/3/2020 1:21 PM (GMT -7)
Just to keep all the info in this one post, I received the results of my fecal calprotectin test and I got an 8 where the reference range is <=50. So now the next step is to speak to my GI and see what she says about all this. And I need to remember to ask where exactly the scarring is that she saw.
profile picture
quincy
Elite Member
Joined : May 2003
Posts : 32472
Posted 9/4/2020 9:38 AM (GMT -7)
And a copy of the biopsies pathology results πŸ˜ŠπŸ‘

Good on the calprotectin test.
q
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 9/4/2020 10:47 AM (GMT -7)
I have to get those from my regular doctor once the GI's office forwards them to her. Which is a pain because I have to schedule an appt, so I wait until I have some other reason to talk to her at the same time. It's like pulling teeth to get the colonoscopy report and the biopsy report. I wish they'd put those on myehealth. It's been game changing to be able to get my lab reports on there and not have to schedule an appointment.
profile picture
quincy
Elite Member
Joined : May 2003
Posts : 32472
Posted 9/4/2020 10:11 PM (GMT -7)
Interesting....the GI should be able to mail it out. A pain for sure.
q
profile picture
Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2397
Posted 9/5/2020 7:39 AM (GMT -7)
GI's office is perfectly capable of mailing it out, or heck, why not send it electronically if the cost of a stamp and paper is too much. But she insists that I get it from GP. Irritating.
✚ New Topic ✚ Reply
12




HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter PinterestPinterest LinkedInLinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.