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Probably an 'impossible to say' question...

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Ms2011
New Member
Joined : May 2020
Posts : 18
Posted 9/3/2020 6:16 AM (GMT -7)
As the title says I'm not sure if my question can really be answered but I just thought I'd ask for my own mind if nothing else.
When I was first diagnosed 3 years I was the only one in my family (that we knew of) to have UC, that was until 2 years later when incredibly my 21 year old nephew was also diagnosed with the same condition. Truth be told, even though I would never wish this disease on anyone, it was nice to have someone to talk to about things as only those with the condition can really understand.
Anyway, my nephew sadly passed away suddenly at home 2 weeks ago. He was greatly overweight and had issues with over/secret eating stemming from some childhood traumas so we thought it was his heart that had given out however when the autopsy was done there was no obvious problems with his heart and no obvious reason for his death.
As his only other issue was the UC I was wondering if this could have contributed to his death. He did say he had his condition under control but he was also so secretive that it could be quite likely it wasn't and he just wasn't saying. As he was dying he complained of not being about to breath (COVID negative) and his stomach hurting.
The only medication he was on was Pentasa granules and suppositories.
I don't really know what I'm expecting from this post, I guess we are all just looking for some answers really, if there are any to be had.
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Michelejc
Forum Moderator
Joined : Jan 2011
Posts : 2572
Posted 9/3/2020 6:29 AM (GMT -7)
I'm so sorry for your loss.
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TroubledTurds
Veteran Member
Joined : Jan 2004
Posts : 8585
Posted 9/3/2020 10:47 AM (GMT -7)
very sorry for your loss - what a sad thing for all involved -

imo, it's a possibility that UC could have contributed but its seems unlikely it would have been the sole cause -

TT
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momto2boys
Veteran Member
Joined : Jun 2013
Posts : 2351
Posted 9/3/2020 11:06 AM (GMT -7)
I’m so sorry for your loss. I think it would be hard to say what caused his death, perhaps UC was a contributing factor, but i doesn’t sound like it was severe enough to cause his death. What a tragedy for your family, my condolences.
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Old Hat
Veteran Member
Joined : Feb 2007
Posts : 5433
Posted 9/3/2020 12:57 PM (GMT -7)
Very sorry to read that your family suffered this tragedy. It could be that your nephew had a sudden severe asthma attack. That happened to a colleague of mine at age 38, who was otherwise healthy. He was walking on a beach with his wife (an RN!) when it struck him fatally within minutes. At work we were all terribly shocked to hear about that because he had a friendly, jovial personality, and was the kind of guy who did not "sweat the small stuff". Obesity might have complicated your nephew's resistance to some environmental irritant, bringing on his breathing struggle. Did he have any known allergies? / Old Hat (40 yrs with left-sided UC; presently in remission taking brandname Colazal)
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Andrina
Veteran Member
Joined : Aug 2011
Posts : 3690
Posted 9/3/2020 1:11 PM (GMT -7)
Well the autospy wasn't conclusive so I can only guess. I have no idea why he suddenly passed away. I'm sorry for your loss.
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Ms2011
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Joined : May 2020
Posts : 18
Posted 9/7/2020 2:28 PM (GMT -7)
Thank you for the replies and condolences.
Whatever resulted in his death definitely wasn't helped by his weight, his mother had asthma when she was younger but he never suffered with it himself.
I have my doubts that his UC was under control because we as a family were always trying to get him to address his weight issues, if he were to admit his UC wasn't under control he knew we would bring up his eating. I am lucky in that food doesn't affect my UC in either a positive or negative manner even when flaring so maybe he was the same but I can't imagine drinking litres of Coke or tubs of Pringles and fatty take outs daily would do anyone's colon any good.
I just don't know if UC would kill so quickly, I always assumed that dying from UC would be rare and generally speaking would happen over a long period of time where a person's body would gradually weaken.
I hope we do end up getting some answers, the not knowing is almost as hard as losing him.
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Old Hat
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Joined : Feb 2007
Posts : 5433
Posted 9/7/2020 3:09 PM (GMT -7)
UC doesn't kill quickly. The worst UC scenario I've heard of is toxic megacolon; you can look it up online via Mayo Clinic or other reliable health info sources. Obesity now is considered to be a comorbidity; it can bring on premature death because it negatively affects the heart, lungs, & vascular system, which impact on the entire body. Of late it's getting even more attention from medical practitioners & researchers because many of the worst COVID-19 outcomes & fatality rates involved obese patients. You wrote that your cousin overindulged in Coke, Pringles, & fatty take-out foods-- over time those could have damaged his vascular system as well as his gut. I don't think that autopsies are always on top of every possible medical condition. The 19 yr-old grandson of a neighbor of mine died in his sleep when he was soon to compete in a major figure skating event. He was physically & mentally very fit and the autopsy could not find any cause whatsoever for his totally unexpected & untimely death. He trained closely with a female partner for pairs skating competitions, and she had no idea what could have caused his death! Death can and will happen. It's a fact that all human beings have to accept. / Old Hat (40 yrs with left-sided UC; presently in remission taking brandname Colazal)
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garyi
Veteran Member
Joined : Jun 2017
Posts : 2075
Posted 9/8/2020 7:01 AM (GMT -7)
Sometimes there are no clear answers as to why someone passes away. Your young nephew had many issues working against his potential for a long life. May he rest in peace.
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poopydoop
Veteran Member
Joined : Dec 2018
Posts : 877
Posted 9/8/2020 7:40 AM (GMT -7)
Sorry to hear about your nephew. UC fatalities are very rare these days and like Old Hat says, the biggest risk is toxic megacolon. That is a medical emergency which can develop relatively quickly (days), but the symptoms are so severe that I don't think anyone could hide it. Also it should have been obvious on autopsy. It becomes fatal when the bowel ruptures and gut contents leak into the body causing infection (sepsis).
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Ms2011
New Member
Joined : May 2020
Posts : 18
Posted 9/8/2020 1:44 PM (GMT -7)
Thank you for the replies. I agree UC is unlikely to be what killed him and maybe we will never really know.
Obesity is a horrible condition, where I live if you are an anorexic girl there are loads of services to help but if you are an over eating male there is nothing.
Anyways thanks again for the replies.
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