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Humira fail?

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Ulcerative Colitis
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Posted 9/19/2020 9:29 AM (GMT -6)
Been a very tough road lately. I was put on humira in March and it had yet to put me in remission. I briefly felt better and was able to get of pred but am back on. Other meds include sulfasalizine, Canasa and rowasa. I had a blood test and results came back negative for antibodies but my concentration was too low. I have a new gi who prescribed weekly dosing but insurance is an issue. They are claiming weekly is off label and that I should switch. Just looking for thoughts? I need to figure it out to start being able to provide for my family again. What biological should I push for if I need to make the switch? Thanks for any advise
Trying to stay positive
Posted 9/21/2020 5:17 AM (GMT -6)
Some people get better response from weekly injections. Didn't help me at all. We went to Remicade after Humira and it was a dramatic difference. Some people say if you fail 1 medication in the same class others won't work either but Remi works for me and Humira did not.

Having said that I don't feel like I am in full remission but doc says it may be IBS now since the only problem I am having is that while stools are formed they are just pieces. I can live like this though so not stressing over it.

I was in full remission on Entyvio -- loved that drug. Sadly it stopped working for me and that's when I switched to Humira.

If Humira was your first biologic you have lots of options.
Posted 9/21/2020 9:09 AM (GMT -6)
I would hope your new gi's office has filed an appeal with your insurance. Typically this is done when insurance turns a patient down. Some people do well with the weekly injections & others don't, not everyone is the same.

Remicade would be a good choice since it has a longer track record than any of the others.

Check with your gi's office to see if an appeal was done on your behalf.
Posted 9/21/2020 10:17 AM (GMT -6)
An appeal has been filed. I’m going to give it a few more days to see but will discuss with my gi doc to see other options. It is my first biologic drug I have tried. I’m just so over feeling bad at this point. If I do change what are the quicker reacting biologics to consider?
Thank you
Posted 9/26/2020 8:30 AM (GMT -6)
Don’t give up hope yet! I struggled at first with Humira and weekly injections have been my sweet spot. I’m now in remission.
Hoping the insurance comes through quickly for you.
Posted 9/27/2020 7:37 PM (GMT -6)
Thanks
Insurance approved . Stumble upon an amazing local specialty pharmacy that pushed through the insurance appeal that was excepted.
Posted 9/28/2020 6:28 AM (GMT -6)
That’s good news! I’m hoping it works for you!
Posted 10/3/2020 10:43 AM (GMT -6)
For anyone who went to once a week, how long did it take to help after making the switch?
Thanks
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