Thank you, everyone, so much for your suggestions and your support. The GI has prescribed rifaximin. I hope it arrives today and I hope helps. Also, we have scheduled a flex sig for next week. If they see inflammation, the doc said she will prescribe steroids. A couple of years ago, she opted out of any more scopes, but we have got to get this issue under control. And I understand that steroids are heavy duty medicine, but I wish she'd give it a try without having to go through the flex sig, just because of the stress of the prep and the test. I've asked for a referral to a colorectal surgeon to at least discuss the possibility of going back to wearing an appliance, and I think an appointment that will happen, too.
I realize, too, now, that hospice doesn't mean death is imminent. I'm sorry I over-reacted, Old Hat. She really could have a quality of life left for her if we could get this darn diarrhea to stop leaking 24/7 from her. Oh, and if we could get rid of COVID, but there's not a lot any of us can do about
that, is there.
As far as an ambulance call to throw her in the hospital, we had her AT THE EMERGENCY room last month for a fall and head injury, and I was so hopeful the doc would throw her in the hospital, now that she was there, to treat the wound but she said she couldn't do that, Medicare would not pay for it because it did not require hospitalization and her head injury was not significant enough, either, to require hospitalization, even though that was what we came there for.
I like the suggestion to contact my Senator, Amy Klobuchar, if I hit brick walls along the way.
I do feel confident that she will get more hands-on care where she is at now, memory care, than she did in AL. The nurse I dealt with yesterday ordered every two hours toileting. So at least every two hours, she will be cleaned again, even if that only lasts for a couple of minutes.
No one should have to live this way. My poor mom. I realize there are worse things, like necrotizing fasciitis or cancers or any number of other things, but this is, personally, the most disturbing health issue I have had to deal with. The wound is horrific.
Thanks again, everyone.
Post Edited (MitzMN) : 10/8/2020 11:16:27 AM (GMT-6)