I am a UC sufferer for 20 years.
Currently I am on entyvio once every month.
I was going somewhat good untill the pandemic started. That was when I started working from home and everything was going better and better until I was having 100% solids, only once a day.
Then the hospital I get the infusion at, started taking in covid patients. My stress levels skyrocketed every time I had to visit to get the infusion. I mean I had nightmares to the point of waking up screaming, the days before and after the infusion.
All went to hell. I lost my solid bms and went back to mucus, gas, blood etc.
They gave me cortiment and suggested (informally) to be sure to not stop smoking or taking nicotine since I use it, not now at least.
I was so scared and stressed that cortiment has done nothing in 20 days since I started it, except to keep me in a semi-controlled state with blood streaks and less gas. Cortiment has worked wonders for me in the past.
They also gave me diazepam.
My diet is one of the most careful I've ever done.
I had extensive bloodwork done and everything is in range. Even vitamin D for which I take supplements.
I got my last infusion but the Doctors told me that if I keep having symptoms I should get a scope done.
I am now even more scared as I believe I cannot wear a mask (I use N100/FFP3 ones) during the procedure and I am afraid I might catch the virus.
They reassure me that the environment is controlled but nonetheless it is in the same hospital where patients come and go and PCR testing is scarce.
I am thinking of asking to have the scope done in another Dr's office. A private one but I am afraid they won't accept that.
For those of you that had a scope during the pandemic, what was it like? Did you get to wear a mask? Were there any more precautions taken?
I have one and a half month until that point comes (if it does, in case I get better) and it makes me feel like hell.
The next drug they are thinking of getting me into is Stelara.
Thank you all! Don't be like me. Be calm, please. It seems like the older my UC thing gets the more easily scared I get.
Post Edited (WalterSkinner) : 10/10/2020 10:07:02 AM (GMT-6)