I have questions because my wound doesn't seem to be PG and has healed some. It just hasn't had proper wound care because I have tried to save appliances and kept failing pouches on longer than I should have(output pouching has been perfect but the blood only gives me about
24 hours wear time before it goes through the barriers and I try to last until 48 hours). To make matters worse, I haven't exactly been given much direction by my doctor so I am flying blind and frustrated after he told me the news. It's as if he guessed it might be PG because healing has been slow, assuming wound care was great and it hasn't been.
For example, my understanding is PG doesn't heal without help but mine definitely has. It healed near my stoma a half inch or so. I also understand it to leave crater like surfacing which mine has not. Everyone keeps mentioning the pain I must be in but truthfully I barely notice pain unless the blood breaks through and I let it on longer because of the supply issue. Otherwise, it feels okay. It might be sensitive to touching but that seems expected with a wound.
So my questions. Does PG heal without help? When active, does it just keep spreading similar to something like poison ivy or chicken pox? Does it affect other wounds on the body like hands, legs, back, or does having it near a stoma mean it is only on the abdomen?(other wounds have healed for me on my body and abdomen). What does the fluid that comes out look like, color, consistency, etc??? PG does affect people with UC so it isn't an indication I have Crohn's, right??(my doctor's exact words were that it means I have Crohn's which seems wild to me since he just looked at it for 2 seconds and everything I read says it affects both illnesses).
It just makes me skeptical and want to question his credibility because who says that when everything says both get it? Likewise, he wants to jump to antibiotics and steroids right away but again, there is nothing that suggests I have PG...and he has said crazy stuff before. Dude cost me an extra surgery/recovery time because he insisted there was no reason to wait after surgery to eat. My hernia repair failed and I was rushed to surgery to repair it again so I just can't trust him.
Thanks in advance for any help. I know it is difficult to go through this and I am sorry you had to.
Post Edited (Apache Rose) : 10/17/2020 7:24:02 PM (GMT-6)