Posted 10/29/2020 10:36 AM (GMT -7)
51 yo fem, dx 16 years ago, well controlled for most part -------worst flare ever, still fighting.
Was improving, FINALLY, started Humira, and on 40 mg pred and steroid enemas, okayed by doc to start tapering the pred. (I am 5'00 and now HUGE) Got down to 25 and got whacked. Pay attention to your body, folks, I knew that this was too fast and I saw / denied my symptoms. (I ate something weird, I had a glass of wine.....)
It has taken me 2 weeks back up to 40 to even leave the house before noon. I would be in the hospital on IV methyl-pred but my GI is WAAAAAAAAAAY too worried about Covid - we are peaking again here in Illinois. It's still in the cards depending how the next 4 days or so go. Please wish me luck and include me in your prayers.
If anyone wants to provide feedback re: how fast the Humira will work, in a major flare, still on Lialda and 40 mg pred, I would appreciate it. It's so random. Doc said at least 4 weeks staying on everything. Next dose of Humira Nov 4. Last 2 days were really good! Today sucked. For no reason.
Best to all - and stay safe.
Hang in there everyone!