Starting Xeljanz :)

cyn555

Regular Member

Joined : Aug 2008

Posts : 332

Posted 11/4/2020 11:32 AM (GMT -6)

I just got the call this morning that I will start Xeljanz in the next few days. I was on Remicade before and got 7 years of remission. It stopped working around July. We tried doubling my dose and frequency of infusions but didn’t work sad

I currently have moderate inflammation so hopefully this new med will kick it in the butt!! Anyone had long remisson on this med? Any bad side effects?

poopydoop

Veteran Member

Joined : Dec 2018

Posts : 1548

Posted 11/5/2020 2:05 AM (GMT -6)

Noone has a long remission on xeljanz because it's a new drug... suzyq's husband was in a clinic trial and has a 4-year remission (and counting). I've been on it 18 months and still doing well - fingers crossed

Spring

Veteran Member

Joined : Jan 2017

Posts : 536

Posted 11/5/2020 3:34 PM (GMT -6)

I am coming up on three months. Still at higher dose, not flare free. That has been my mo on pretty much every medication, though. Only thing is it took me longer to kick a cold.

limey

Regular Member

Joined : Sep 2016

Posts : 185

Posted 11/9/2020 7:17 AM (GMT -6)

Im just past 18 months for me, its been a game changer for me plus no side effects .

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