Uniform Charlie said...
I can't say whether it has progressed over time because of ebbs and flows. My neurologist said that further testing would not yield any results and I believe him.
I think if your symptoms aren't progressing and you aren't in pain then you probably don't have to do much about
it. Depends on your comfort level. The first neurologist told me that "there is no point to further testing because i'm confident everything would be normal and we would just waste your time and money." I don't trust physicians who tell me that there is no point to further testing and that my tests will be normal before doing them. Anyhow, I never went back to that neurologist and the next one did one nerve test, which showed abnormalities and gave me a real diagnosis. The useful part of the diagnosis is that you may be able to find a root cause, as they will run more tests to see what is causing the neuropathy. 50% of people usually find a cause and 50% don't, but 50% is high odds. The good news is that if it's due to glucose intolerance, thyroid, toxins in medications/toxin exposure, vitamin deficiency or autoimmune neuropathy, they can actually treat it and reverse it.
Thanks that is interesting regarding reversal. To be honest I had assumed it was the mesalamine for a while so just figured there was nothing I could do since that's really the only approved med for mild/moderate UC.
Post Edited (Uniform Charlie) : 12/24/2020 11:26:08 AM (GMT-7)