Posted 12/21/2020 12:39 PM (GMT -6)
Week 9 of Humira with almost no real improvement, still urgency / frequency. Blood and D had stopped until step down from 20 to 10 of pred, then blood returned, no D though..... (rapid taper on advice of endocrinologist as now developed Cushing's).
Understand can take up to 12 weeks to see improvement, but we are at 9 here.....barring a miracle.
Do have some good days, but most are still typical flare days, some (like today!) just all day like a clean out day. Cannot leave the house. Lots of cramping and almost constipated (different than usual tenesmus. Heading in for first blood work / antibody check / next week.
What's been people's experience (WE ARE ALL DIFFFERENT AND RESPOND DIFFERENTLY), but have most of you - failing one biologic - tried another like Remicade or Entyvio?
Was so hopeful but really no meaningful change here.
Thx and stay safe!