I appreciate all the replies!
I have not tried methotrexate yet but I will mention it to my GI.
I’m open to the idea of trying the other drugs, I just wasn’t sure if it was worth stopping something that “somewhat” works.
This may sound weird, but I also don’t know if I’m “overreacting”. As in, maybe I should be okay with 4-5 loose BMs and cramping a day? I will say thankfully I don’t see much blood, if any, unless I go without Remicade for 7 weeks or more. Perhaps I’m doing better than I think and I just need to be okay with it? I don’t know if I have a high pain tolerance, but I presume I do to an extent as I’ve been sick for 10 years with no real remission stage.
The idea of surgery utterly terrifies me. I can’t even fathom the thought. I’m very active (when I’m able to be) , and ride horses and I feel like that might hinder those activities.
Also I am on a good probiotic, as well as a digestive enzyme. Unfortunately I did have to pause it , as it seem like it made my symptoms a little worse recently. It’s so hard to tell what’s triggering the flare anymore!
Again, I appreciate all the help and advice.
Hi! Long story Short I exhausted all the meds and I had to have J pouch surgery. This was 10 years ago. Remicade was pretty much my last shot and I failed that. I know surgery is terrifying. Believe me, nobody was more scared than I was but I really didn’t have much of a choice at that point.
I am commenting because I noticed you said you do horse riding. I do as well! And if it wasn’t for having the surgery I wouldn’t be able to do things that I enjoy doing today. Just try to keep an
open mind when it comes to your options...that’s really all I wanted to say. Best of luck to you!