FlowersGal said...
Entyvio takes awhile. But I’ve been on it for 3 1/2 years and in remission. I
Was about in the same condition as you when I started. I was steroid dependent but started a slow taper with my first infusion and was able to successfully get down to zero steroids for the first time in a year. There were slight hiccups along the way but I used mesalamine suppositories and uceris foam on those days. It was about four months before I had pretty complete absence if symptoms although a colonoscopy around that time showed slight microscopic inflammation — so I wasn’t completely clear but by the next scope I was in complete remission. Since then been living and eating normally again and most days forget I have UC. I still have hiccups every once in awhile but keep the rectals on hand for those days.
I’d say it’s extremely encouraging that you’ve seen a decrease in symptoms plus able to be off budenoside after only 3 infusions!!!!! Give it a couple more months and don’t be discouraged! Progress can be slow.
Thank you so much for sharing your experience, it's very encouraging! I just got results back of a repeat fecal Cal Pro and while my level is still very high, it's almost half what my first result was back before starting meds. My GI is pleased with that response.