Posted 1/9/2021 7:55 PM (GMT -7)
Has anyone ever had chicken pox/shingles on their stoma? October 27th I developed a red flat rash on my abdomen, back and legs. I thought it was an allergic reaction from the contrast they used in a CT scan earlier that day. (Ct was for Kidneys-they are struggling. Infection, pain, blood, 54 average for egfr. Ct showed possible 4-5 mm stone.) I took Benadryl for a few days and the flat red rash went away.. Then about a week after CT I developed 3 sores on my stoma, 2 on the skin by the stoma...and it looked like a swollen bump down inside the stoma hole. 24 to 48 hours later I developed a shingles rash. By the time I had a telehealth visit with my doctors (another 48 hours) the sores on the stoma had changed to just dark red spots. My infectious disease doctor didn't think you could get chicken pox/shingles on your stoma. He gave me antivirals. The rash is now just dark purple spots.
December 11th My stoma stopped working. CRS told me to take laxatives to clear it and if not he'd see me at the hospital. It finally released watery output. I am still partially obstructed. I take Milk of Magnesia 3 times a day to keep it liquid. CRS won't do a scope until after I get the vaccine and the Covid cases go down.
I feel ok--except for the pain where the shingles rash was. My UC/Crohns seems like it is in remission. But...I am having psoriasis and exzema rashes break out on my legs. My Uevitis is back in 1 eye. And the Prometheus results came in at 7.1 today..
I am trying to figure out if the obstruction could be from the shingles, a flare or adhesions? (My GI keeps saying he has never heard of chicken pox/shingles in the intestines..but I wanted to run it by you all.) Should I ask my GI to raise my Remicade amount?
Any advice would be appreciated.