HealingWell
Search Close Search
☰

How to deal with ulcerative colitis proctitis pain

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/29/2021 1:55 AM (GMT -6)
Hello everyone! I am a 25 year old female and have been diagnosed with ulcerative colitis for 8 years now. I struggle with pain almost everyday and I honestly get so stressed and so much anxiety because I don’t want to rely on pain medicine but it helps me get through my day. I also get anxious when I ask for pain medicine at the hospital or my general practitioners office and they give me weird looks. They make me feel like I’m a drug addict when I’m not. It’s just very depressing when you feel like no one understands you or how extreme your pain is. So I was wondering what others do to help with the pain if you don’t rely on pain medicine. My pain usually feels like a stabbing pain. The only way to get through it is to sleep all day which makes me even more sad because I feel like my day is wasted. And it’s sucks when you have both pain and you’re flaring! Please help. Any advice is welcome.
Posted 1/29/2021 2:48 AM (GMT -6)
Colitis shouldn't cause daily pain when you're in remission. Sounds like you might be flaring and need stronger UC medication. For me pain is the first symptom of a flare. Have you done a calprotectin test recently or seen GI?
Posted 1/29/2021 2:57 AM (GMT -6)
I haven’t done any blood work for my GI in a year. Due to me changing specialists because I feel like none of them understand what I truly need
Posted 1/29/2021 3:42 AM (GMT -6)
That's sad. I saw 5 different GIs before I found one I like (and who got me in remission). He is a specialist in IBD and I also switched to an academic hospital (i.e. they are doing clinical trials and active research) which I think helps. Calprotectin is done as a poop test. Bloodwork is not very helpful for diagnosing UC flares. I do think you should try to identify the cause of your pain as it might be inflammation which needs its own medication rather than pain meds.
Posted 1/29/2021 6:05 AM (GMT -6)
What meds are you on for the colitis?
Posted 1/29/2021 9:18 AM (GMT -6)
You definitely need to step up your UC meds. You shouldn’t be flaring and in constant pain from UC. Rectal meds work wonders for rectal pain. Also there is a anti spasmodic med that can be used.
✚ New Topic ✚ Reply