Posted 2/1/2021 8:37 PM (GMT -6)
I've been pretty lucky until this past year, in that my flares have been infrequent and able to be nipped in the bud by increasing my balsalizide and adding Canasa suppositories in the morning (enemas are a standard at night for maintenance). But this year has been rough. I had my first flare in years in December 2019 (I stopped birth control pills and went into menopause, and I'm convinced that triggered the flare). Then with the stress of the pandemic, being laid off in September and still being out of work, I've been flaring periodically since then. I've seemed to get it under control, then after a couple months, I'll see blood again.
Over the past week, I've been having the worst symptoms I've had in many years -- blood, a lot of abdominal discomfort, major urgency and loose stools. So far my usual step-up measures aren't working. My gastro is hesitant to prescribe prednisone right now because of COVID (and I'm not wanting to take it anyway because of that). I've gotten some hydrocortisone enemas to try. The next option he's mentioned is Uceris, but I'm still hesitant, because it's also a steroid, though not as problematic as prednisone.
I had a calprotectin test in September when I was seeing blood, and my results were good: 35.6 mcg/g when <=50.0 mcg/g is normal.
I'm struggling to figure out what to eat. To be honest, the stress of everything has pretty much ruined my appetite for months. My usual go-to foods when flaring are baked salmon, sauteed spinach, baked potatoes, baked sweet potatoes, egg noodles, eggs, boiled pierogies, bananas and rice. I'm a pescetarian, so seafood is the only meat I eat. I'm curious to see what foods others find soothing or at least not so problematic to eat during a flare.