I am very familiar with the doctors and facilities you have gone to.
I elected 8 weeks ago to have the total procto colectomy and jpouch placed due to my very advanced UC and very high cancer risk
I wound up with a temp loop osteomy and hope to be reconnected in the next 30 days.
My thought and this is my personal thinking; I have always and still believe in avoiding an ileostomy. I did not have a choice because during surgery my scarring and inflammation of the rectum and sygmoid were so significant that a diversion had to be created.
My understanding is that jpouch is contraindicated with crohns, but only the doctors can tell you if it is feasible and what the benefit/risk situation is.
I will tell that one surgeon at Cleveland clinic who I interviewed insisted i get a mri of small bowel to rule out Crohn’s disease if I was going to use him. I did not get the mri and did not use him.
It’s a tough call that only you can make in conjunction with your care team, but I would never agree to a permanent end ileostomy without exhausting every possibility.
That’s my my thinking and two cents worth.
Post Edited (New577) : 4/4/2021 6:14:41 PM (GMT-6)