Posted 4/4/2021 6:41 PM (GMT -6)
Here is my story. I started to experience a lot of severe abdominal pain in 2018. Blood work, stool, CT, ultrasound, colonoscopy showed nothing. Time was passing by but my pain was just getting worse and came to the point I couldn’t sleep on my left side anymore. Went back to my GI in 2019. He didn’t feel like there was a need for more testing and told me it could’ve been just a muscle pain. All blew up in 2020. I started to have a bloody diarrhea, had an emergency colonoscopy during covid lockdown and was diagnosed with a moderate to severe proctosigmoiditis. I tried mesalamine, prednisone, mesalamine suppositories, mesalamine enema, entyvio. I had colonoscopy in December of 2020 and was told I was in remission. The pathology report confirmed it. I am on entyvio now only. I continue having constant pains on my left side, although the pain feels different from the one before I was diagnosed with UC. I can eat only a limited variety of food after UC diagnosis. I would like to get a second opinion in one of the research centers. I am willing to go to NY City and/or Boston. Can anybody recommend a good GI in NYU, weill cornell, MGH, etc. ?