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When you have to see the Dr/Tests

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Ulcerative Colitis
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Posted 4/19/2021 3:38 PM (GMT -8)
Hello everyone,

I saw that the Ostomies board is pretty quiet, so I decided to post my question here:

In 2016, I had my J-pouch surgery, the Dr. said I would have like a colonoscopy type test every year. So today (of all days on my birthday) they called & my test is on May 7th. Now every time that the test comes up, I get all stressed. I wanted to ask does anyone else get stressed when they have to see a Doctor or get tested? How did you control it?

Thanks
Posted 4/19/2021 5:35 PM (GMT -8)
Sorry to hear this causing angst for you.
I am having my takedown surgery on May 7th.
What I can tell you is that I was getting a colonoscopy two times per year and then yearly and I just assumed everything would be fine.
Then it wasn’t fine, and I surrendered my colon.
I went through some dark days last fall as I did not know at first that jpouch was an option and I thought I would need a permanent osteomy. I was terrified.
I am very grateful no more UC and no more chance of CRC.
Question, as you have had your pouch for 4 plus years now, how has been your experience? If you have had no issues or minor issues, just think of it like your yearly colonoscopy.
I am really stressed about the butt-burn I am going to endure as the jpouch goes live, and the many BM’s I will experience the first few weeks.
I am assuming all this is behind you and you and your pouch are having a happy life together.
Please stay strong and know that everything will be fine specially if you had no symptoms of anything wrong.
Posted 4/19/2021 5:44 PM (GMT -8)
I don't know why you're having a yearly test. I haven't had any type of scope in years. I don't go to the surgeon, or the gi, anymore and I haven't in years. Last trip to one or the other was the surgeon for butt burn, which he gave me a cream for and that was the end of that.
Posted 4/20/2021 3:52 PM (GMT -8)

New577 said...
Sorry to hear this causing angst for you.
I am having my takedown surgery on May 7th.
What I can tell you is that I was getting a colonoscopy two times per year and then yearly and I just assumed everything would be fine.
Then it wasn’t fine, and I surrendered my colon.
I went through some dark days last fall as I did not know at first that jpouch was an option and I thought I would need a permanent osteomy. I was terrified.
I am very grateful no more UC and no more chance of CRC.
Question, as you have had your pouch for 4 plus years now, how has been your experience? If you have had no issues or minor issues, just think of it like your yearly colonoscopy.
I am really stressed about the butt-burn I am going to endure as the jpouch goes live, and the many BM’s I will experience the first few weeks.
I am assuming all this is behind you and you and your pouch are having a happy life together.
Please stay strong and know that everything will be fine specially if you had no symptoms of anything wrong.

My experience has been good. I'm not taking anymore UC meds, I'm going to the bathroom 4-6 times a day, & I can eat anything even though I try to stay away from Spicy Foods. And I can go out the house more often.
Posted 4/20/2021 3:55 PM (GMT -8)

notsosicklygirl said...
I don't know why you're having a yearly test. I haven't had any type of scope in years. I don't go to the surgeon, or the gi, anymore and I haven't in years. Last trip to one or the other was the surgeon for butt burn, which he gave me a cream for and that was the end of that.

They say I'm at a risk for cancer
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