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Ulcerative Colitis
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Posted 4/21/2021 11:35 AM (GMT -6)
colonoscopy mild to moderate having second thoughts about the entyvio Im not as bad as I was still having urgency issues will entyvio help the rectum heal 7 years of having UC and could never get the urgency under control
Posted 4/21/2021 2:52 PM (GMT -6)
I loved Entyvio. I was in complete remission when I was on it. Sadly it stopped working for me, but many others have been on it for years. If you have tried all the rectal and oral meds Entyvio is a great choice. It can take a while to work so it's good that you aren't flaring badly right now.

Let us know how it goes.
Posted 4/21/2021 3:16 PM (GMT -6)
Entyvio wasn't the drug for me BUT i had a badly ulcerated rectum with urgency for 3 years and it has healed itself (thanks to xeljanz) so yes you can heal after years of inflammation.
Posted 4/22/2021 9:03 AM (GMT -6)
Been on entyvio for 4 years and am happily in remission! No side effects. Had infusion #29 2 days ago as a matter of fact.
Posted 4/22/2021 10:05 AM (GMT -6)
Flower Gal,
I am wondering how quickly did you turn the corner on entyvio and was your symptoms as you commenced it?
Thanks,
Hugo
Posted 4/22/2021 10:01 PM (GMT -6)
I was very sick when I started entyvio. Had lost 25 lbs and was under 100 lbs. I was steroid dependent. I was in complete symptomatic remission (absence of physical symptoms) around month 4. But in those 4 months I was able to successfully wean off prednisone and had a gradual decrease in symptoms. So while 4 months may sound like a long while I wasn’t bedridden and running to the bathroom after each sip of water or bite of food. During those 4 months and for some time after I continued with rectal meds. A colonoscopy after 4 months did show some microscopic inflammation but the next one did show no active inflammation.
Posted 4/25/2021 6:03 AM (GMT -6)
Thankyou for the info Had my first dose of entyvio hoping for the best I been on rectal meds steroids uceris foam and pill Lialda LDL bupropion all of these meds only worked for a short time At this time I have no bleeding going 4 to 5 times a day all with urgency. im still taking LDL which helped me get out of a bad flare but just cant seem to put me in total remission trying the carnivore diet now which is not easy but hoping to going back to eating normal
Posted 4/25/2021 8:33 AM (GMT -6)
Good luck! Wishing you a ticket to Remission Land! Let us know how it goes!
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