Posted 4/26/2021 8:50 AM (GMT -6)
I was on Humira for 4 years. Started in the fall of 2016. Diagnosed at age 54. Great results. Humira got me into full remission in 8 weeks back then.
But... Got pneumonia in the spring of 2020. Came off the Humira per the ER doctor’s recommendation to get over the pneumonia.
After the pneumonia cleared up, Because I was in remission, I went to see my GI, and I talked him into letting me stay off the Humira...not going back on it...And try and manage my UC with diet and exercise. He was not thrilled, but reluctantly said ok.
I stayed in remission for a long time, but, unfortunately, started to flare here several months ago. No blood. But a lot of diarrhea.
I started back on Humira the beginning of March 2021 with the maintenance dose. I’m now 7 weeks in.
My diarrhea has improved, but I’m still not in full remission. Still too much diarrhea. Most days going 3 times, very loose. Went to see my GI on Friday, and he is now recommending we start the loading dose tomorrow. 160 ml, then in two weeks, 80 ml...then in two weeks after, go to 40 ml.
This is the loading dose the way I started on humira back in 2016. Which, back then, no problems.
I’m just a little nervous here, because I’ve already got 7-1/2 weeks of maintenance dosing in me. My last injection of 40 ml was 4/19, (just last Monday), and now I’m about to pump another 160 ml into my gut this week.
I’ve searched Humira’ s website, and I even called them, and they said I should call my doctor if I have dosing questions.
So, I have a call into him.
Just curious, has anyone here ever had an experience with more than 160 ml in your system at one time?
Thanks in advance.