Posted 5/10/2021 1:48 PM (GMT -6)
I recently had my infliximab levels tested and they were below range and I'm on the low (albeit very low) range in antibody level as well. I'm on max dose every 8 weeks. I just stopped Imuran in January after being on it for 3 years. They now want to do max dose every 4 weeks and put me back on Imuran at 100mg. With all that said, I've been in remission and doing fine for 2+ years. They said it's only a matter of time before a flare would start and I could lose ability to use this medicine.
I'm hesitant. It feels aggressive. To double the max dose and put me back on Imuran. She said antibodies this low are reversible if we follow that plan of care. And it's not permanent meaning I could end up spacing out infusions down the road and maybe come off Imuran again as well.
Anyways, just looking for some thoughts or if people have been in similar situations. It's frustrating because I feel fine. But on the flip side, I know if I don't go along with this and a big flare starts, I'm going to be kicking myself.