Posted 5/25/2021 3:45 PM (GMT -8)
What dosage/frequency of Remi are you on? I agree with your definition of remission. But I think you should give whatever dose of Remi you are on a bit more time. Still early and as long as you are improving slowly week by week, or even month by month that's a good thing.
I was in a bad flare when I started Remi after 2 previous biologics stopped working. Saw a lot of improvement pretty quickly and was functional, but I haven't been able to get to remission yet and it's been 2 years. We increased the dosage after 5 months, then increased the frequency after another 5 months. Stayed at 6 weeks for about a year and in April we maxed to 4 weeks. Have seen more improvement after the switch to 4 weeks so am hopeful. Now going 2-3 x/day (sometimes 4,my normal is 2-3 in remission), somewhat formed or pieces most of the time, no blood for months. Just not quite there yet.
Some people respond to meds really fast. Some don't. Patience is very hard, but hang in there. You were able to get of Pred! That is huge!!