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What are your Humira doses?

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Ulcerative Colitis
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Sam1996
Regular Member
Joined : Oct 2014
Posts : 130
Posted 6/6/2021 11:35 AM (GMT -6)
Had my first flare in like 8 years a couple years ago. Since then I haven’t gotten totally better. Solid BM 1-3 times a day with pretty consistent bleeding. some weeks that are better than others. Pain is there. It’s just been miserable.
Now I feel like I’m getting worse in a stair step way. My meds are allopurinol+mercaptopurine , mesalamine enemas
Humira 40mg pen every 2 weeks.
GI won’t let me go up on the Humira and I just don’t understand. I feel like it’s a maintainer dose I’m on, and that he’s just going to let me flare. Thoughts?
And also curious about your Humira doses ty
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straydog
Forum Moderator
Joined : Feb 2003
Posts : 18923
Posted 6/6/2021 7:20 PM (GMT -6)
You are on the normal dose, how long have you been on Humira? Ask your dr to check antibody levels. Some drs will agree to weekly shots, but it also depends on whether insurance will pay. Push for an antibody test.
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island time
Veteran Member
Joined : Dec 2014
Posts : 2299
Posted 6/6/2021 8:21 PM (GMT -6)
Two weeks ago I began Humira with a 160 mg “starter” dose. 80 mg this week. 40 mg 2x mo. from then on.



Mod to severe UC
Dx’d 3/21
Humira treatment began 5/21
62 yo male

Post Edited (island time) : 6/7/2021 9:31:45 AM (GMT-6)

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Ms2011
Regular Member
Joined : May 2020
Posts : 69
Posted 6/7/2021 6:41 AM (GMT -6)
I'm on the standard dose of 40mg every fortnight
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Sam1996
Regular Member
Joined : Oct 2014
Posts : 130
Posted 6/7/2021 8:03 PM (GMT -6)
Been on it for 2 years now. Antibody test would be a good idea.

I feel like I feel better the day/week after the shot. Then start getting a little worse the second week. I definitely take it early sometimes and they don't notice though....so that helps to have a little freedom. I know its not a good thing to do though. But I feel like they're going to let me flare so whatever.
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