Posted 6/9/2021 7:43 PM (GMT -6)
Welcome to the club. I have failed everything else (except Xeljanz) and have been on Stelara since early April and we went straight to 4 weeks instead of 8 weeks because my flare is not even responding to 60mg of prednisone, and it has done *nothing* for me. I spoke to two IBD specialists and they told me that at this point, it is clear it isn't going to work. Hell, multiple courses of IV steroids (30mg of Solu-Medrol twice a day) after blood transfusions slightly lessen the blood and D, but won't stop it, and within a few days of leaving the hospital, I am back at square one. No Xeljanz for me -- both specialists say there I too low of an efficacy rate for severe pancolitis UC, and with the new warnings, it isn't worth the risk.
Ask your GI to test your levels before your next dose -- maybe 4 weeks will work if you have had some response? Good luck