Another, hopefully shorter, update. Pretty depressed right now, truth be told.
Got a letter today from the cardiology department of the hospital I've been referred to. Wasn't expecting to hear from them this quickly, to be fair. They don't actually have a date for me yet, but did say if I've not heard anything by the 19th November to get in touch, so hopefully it won't be a long wait.
A discusson with somebody on Reddit led me to think I have angina. The symptoms certainly match up. Obviously I will need to be diagnosed first, but I am just so depressed at the thought of having a serious heart condition in my 40s. Weird thing is, my blood pressure is always perfect so I wasn't really worried about
my cardiovascular health, despite the chest pain. Hell, a few months ago my older brother was envious of my blood pressure results! (We were both using my dad's blood pressure machine.) His results were sky high, while mine were in the ideal range. He did get checked out by the way - think he's on medication for high blood pressure now.
I did phone the pre-op assessment healthline, but the woman couldn't tell me anything. All she could say was there wasn't a date for surgery, which really doesn't tell me anything. She said the system didn't tell her any more than that, and I believed her. Just going to have to assume that the surgery is on hold until the heart stuff is sorted, but you never quite know with the NHS - often the right hand doesn't have a clue what the left hand is doing.
I'm also depressed as hell about
my Crohn's. Everything I eat causes so much pain and discomfort - it's not agonising but it goes on for hours and is seriously uncomfortable. And it's got worse recently - I'm starting to lose my appetite and eat less, which is not normal for me. I'm also worried about
my crap diet and wonder if that's what led to the heart problems in the first place. I barely eat fruit or vegetables anymore. I just eat rubbish because I'm too lazy and tired to prepare fresh food and it's unpredictable what effect it'll have on me. An apple or a small side salad will usually be okay, but sometimes I've stretched out the healthier or more varied eating to two or three days and then ended up going through a night of hell.
I don't know if I have a stricture, adhesions, or what. I remember having an MRI scan done where there was apparently moderate dilation of the bowel behind the anastomosis - you see this sort of dilation in strictures, as the bowel behind a stricture stretches to accommodate more food 'cos there is a bottleneck there. However, the follow up sigmoidoscopy failed to find any stricture. That was a couple of years ago, so things might have changed since then.
Also worried about
my teeth. Most of them bleed when I use interdental brushes and I cannot get it to stop - god only knows I have tried. Long story short, my NHS dentist fobbed me off for several years even though I was worried about
gum recession. Eventually went to a private dentist who told me I had advanced periodontal disease. That's the only time in my entire life I regret not making an official complaint about
somebody because by the time I saw the private dentist, the state of rot was too advanced for him to treat. He and the hygienist have done their best, but my teeth have just got worse and worse since then, despite brushing 2x a day, etc. I'm worried that the bleeding teeth might be causing heart issues too (there is a strong link between poor oral health and systemic inflammation - the mouth acts as a gateway into the body for all sorts of bacteria).
I cannot take much more of this physical falling apart. Sorry to be so depressing and maybe tomorrow I'll feel a bit better (lack of sleep isn't helping), but right now I just can't. I'm only 46 and I feel like 96. It's ridiculous. Crohn's has wrecked my body. Horrible disease.
Post Edited (NiceCupOfTea) : 11/9/2021 9:24:07 AM (GMT-7)