What are your symptoms like at the start of your Stelera journey UCyousee? Do you still have significant joint issues?
Hi Simon, so I don't derail Dontscopeme's thread, here's my answer:
Day 1 (yesterday) I had the IV infusion. I was very tired in the evening and by about
9pm fell asleep on the sofa. I did a Google search and it seems that it's quite common for the first couple of doses of Stelara to cause fatigue.
Day 2 (today) I've woken up with sore wrists, and sore finger joint (it really is just one joint on one finger usually!) but it's very early days, and I'm coming off the Clipper (beclametasone gastro release steroid - 5mg) too, so lots going on right now. I don't currently have inflammation under my foot as it seemed to get under control with some ibuprofen gel, taking a few days off from doing a lot of walking, and a change of footwear.
Coming off Xeljanz / Tofacitinib (I stopped last week) seems to have resolved the constant sore throat / sore gland feeling. Fingers crossed that will last.
I'll update on how I get on in a few weeks when the Stelara's had time to kick in. I'll start with the injections in 8 weeks time. Crossing my fingers for this one!
Post Edited (UCyousee) : 9/11/2021 7:11:16 AM (GMT-6)