Feeling any better today, Rusty?
First off. Thank you so much. EVERYONE. I can’t tell you how thankful I am for this forum.
I can’t imagine how “lonely” this UC would feel without this forum.
It’s pretty lonely and depressing at times WITH this forum! Lol
Friends (and I am so blessed with several great ones) can sympathize. But no way can anyone truly know what it’s like to walk a mile In These shoes unless you HAVE UC.
It’s can feel a little like Job in the Bible at times when he was really miserable.
So. Yes. I split my dosage yesterday. I took Xeljanz 10 mg and prednisone 20 mg at 7:45 am and again, same thing, at 7:45 pm.
Yesterday was my third day on the 40 mg dose of prednisone.
It definitely had a positive effect. Splitting up the dosage. Thank God!
I was shocked I was able to fall asleep normally. I’m guessing that has to do with the fact that I haven’t slept well for about
a week or maybe longer.
I still woke up several times ( I think it was 3 times) in the night with the cramping, then the slow butt clinch walk to the toilet, feeling like if I walk faster I might poop my underwear, then get to the toilet, then the little bit of D with cramping, then the mucus wipe, then looking down in the bowl after multiple flushes during the little bit of diarrhea, then at the end seeing some small pieces of red and brown way down there. But all These things…”better” than the night before. Still a ways to go. But not as much blood on the toilet paper last night, and all the other things I just described “slightly better”. I’m starting to get my hopes up that I might actually be HEALING! Can it be? Lol.
Still sore this morning. Lower abdominal area. Feels like I did 20 sit ups last night before bed.
I’ll keep posting updates. Someday someone might find this thread and be encouraged a little by my awful recent journey. Tenemus totally an awful experience!
Thanks again to all for your encouragement and ideas and comments.
Post Edited (Rusty Barr) : 9/17/2021 8:30:15 AM (GMT-6)