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Third dose of Inflectra coming up

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Ulcerative Colitis
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Posted 10/27/2021 12:28 PM (GMT -8)
So my third dose of Inflectra is coming up next Monday. After that my loading dose phase will be done. I do feel like I’ve had pretty good results so far even though have had a couple blips.
For those of you on Inflectra or Remicade, how did you feel after the loading dose phase was over? If you had good results were you able to maintain until the 8 week maintenance dose? It seems like such a long time between doses to me.
Would love to hear your experiences!
Posted 10/27/2021 1:02 PM (GMT -8)
I was in pretty bad shape when I started Remicade, but I saw definite improvement after the loading doses (actually saw improvement almost right away), but I had lingering symptoms for a long time and we kept adjusting the dose and frequency (see my signature). I finally feel like I am in a good place but it took much longer for me than it does most people. Even with the lingering symptoms I was sooooo much better than when I started I could have lived with it like that. I am older and had already failed 2 other biologics so I didn't give up on it.

I think most people do just fine on an 8 week schedule, but keep in mind that dosing and frequency can be adjusted if you need to.
Posted 10/27/2021 1:42 PM (GMT -8)
Haven’t been on remicade but entyvio dosing schedule is the same. The 1st 8-week stretch is not awful but you might experience a few mild symptoms. I don’t remember blood but more mild cramping. If you have rectals you can use that helps a lot!

Good luck!!!!
Posted 10/27/2021 5:37 PM (GMT -8)
Ditto as CCinPA.

Hang in there!
Posted 10/28/2021 4:06 AM (GMT -8)
I too was in pretty bad shape when I started Remicade. I could tell a little difference at the end of the loading doses, however, by 6 months I could tell it was working. As long as you can tell it's working that's all that matters, we all react differently.

Take care.
Posted 10/28/2021 5:36 AM (GMT -8)
Thanks everyone. I just get so nervous about symptoms returning. Hopefully all goes well
Posted 10/31/2021 8:17 AM (GMT -8)
Final loading dose coming up tomorrow! I’m feeling so nervous. I hate feeling this way every time especially since both prior infusions have gone so well. Ughh
Posted 10/31/2021 8:38 AM (GMT -8)
You will do fine. Don't let your mind wonder & get all worked up, it's too dang stressful. Find something to do today to occupy your time so you won't be thinking about it.

Sending you good vibes!
Posted 10/31/2021 8:47 AM (GMT -8)
This definitely my problem. My mind wanders and thinks of all the what ifs that could go wrong. Thanks for the suggestion, I’m gonna try to keep my mind occupied today!
Posted 10/31/2021 2:41 PM (GMT -8)
Every time you find yourself thinking a scary/nervous thought immediately remind yourself that’s it’s just a thought and not the reality and then try to imagine a positive (remission! And all you can do when you feel good!) instead. I know it’s really hard— and I don’t always succeed at it either but the more you try the easier it is.

Anyway … I’ve been in your shoes so understand your fears.
Posted 11/1/2021 6:01 AM (GMT -8)
Thanks for the encouraging words. It did help to find something to keep busy with yesterday. My infusion is in a couple of hours and I’m very nervous but trying to work through it. I get so nervous about having a bad reaction even though deep down I know lots of people take this medication with no issues.
Posted 11/1/2021 12:19 PM (GMT -8)
All done and it went fine, very uneventful. I hope I’ll be less nervous next time
Posted 11/1/2021 1:53 PM (GMT -8)
You definitely will as you get more comfortable with the process!
Posted 11/10/2021 6:28 PM (GMT -8)
Well it’s been a week since my third dose and I feel SO good. I’m really hoping that it will last.
Posted 11/11/2021 7:24 AM (GMT -8)
That's good to hear, Haley!!! Hope you feel well for many, many years!!
Posted 11/11/2021 7:53 AM (GMT -8)
Yay! That’s a very good sign it’s going to work for you. Don’t be discouraged if you have some days of going downhill a little — that’s very common in early treatment stages, especially the first long 8 week interval. Hit any symptoms with any rectals you have on hand for a few days and remember you’re in for the long haul — the road to remission is not smooth and even but can have a few bumps along the way. Keep us updated!
Posted 11/11/2021 9:50 AM (GMT -8)
Yeah I’m hoping I make it with minimal symptoms if any during the 8 week wait.
Unfortunately rectals don’t work at all for me unless it’s a steroid enema.
Fingers crossed it all goes well
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