So I was first diagnosed with ulcerative colitis back in February 2016. Just had my second major flare around August 20 and after a month of blood/mucus/inflammation, went on Canasa suppositories per a zoom call with a nurse bc my first flare 5 1/2 years ago indicated most activity at or near the rectum and I felt this could be the same.
I also set up a colonoscopy for yesterday. After a full 3 weeks of Canasa, I began to have more normal stools to the point where, for the past 9 days or so I'd gone once or not at all all day and no blood or mucus. The stools were formed but soft but not the diameter of a normal, non-flaring stool.
This brings me to yesterday, when I had my colonoscopy from the gastroenterologist. It had been about
8-9 days that I began having only one or no stools per day from normal 8 or so from the beginning of the flare through 3 full weeks of Canasa (9 weeks or so). Below are the findings of the colonoscopy, but in short I am still exhibiting ulcerative colitis above the reach of the suppository, so he gave me a prescript
ion for Prednisone, which I got last night and started this morning to last 4 weeks, tapering from 30 mg the first week to 5 mg the fourth week. What struck me as confusing was recommending HIGH fiber foods, since I thought that was not recommended, or maybe low fiber is good before a flare occurs to keep it from happening, but once it does high fiber helps because the medication will take down the inflammation despite high fiber? Also, he instructed me to get bloodwork done and “fill out the Zeposia order form," but Idk what that is, did not receive one in my packet and the lab didn't know what that referred to either. So I sent him a message on my patient portal to explain it and am awaiting a reply. Anyway, this is my update. I believe the Canasa did work but didn't reach the affected area above its reach, hence the need for prednisone. Also I asked him if I have to have a strict diet and he seemed to think it wouldn't make much difference, which is what some have suggested to me in here (eg. quick). So I guess there's no sense in sacrificing coffee or things you like to eat at least sometimes since it won't help much. Maybe when I'm free and clear I'll add apple cider vinegar and EVO and eat some resistant starches, etc. over time to possibly stave off a flare but won't always avoid foods I like.
Thanks and as always, I appreciate any suggestions/observations or telling me I'm wrong in my current thoughts, as I am new to this because I never had to think much about
it before now as my flare was “moderate” but really bad for me.
Colonoscopy findings verbatim (some redundant but this is what it says):
Normal mucosa was noted in the terminal ileum. Multiple cold forceps biopsies were performed for ulcerative colitis surveillance. This was done to screen for dysplasia in flat mucusa. Normal mucosa was noted in the cecum, ascending colon, transverse colon and proximal decending colon. There were no AVMs, diverticula, polyps, masses, evidence of colitis or other abnormalities seen. Retroflexion of the multiple cold forceps biopsies were performed for ulcerative colitis surveillance. This was done to screen for dysplasia in the flat mucosa.
Continuous congestion, friability and granularity were noted in the descending colon starting at 35 cm from anus continuously to rectum. These findings are compatible with colitis and ulcerative colitis. Mutliple cold forceps biopsies were performed for ulcerative colitis surveillance. This was done to screen for dysplasia in flat mucosa.
Our recommendations are as follows:
- High Fiber Diet.
- Fill out Zeposia order form.
Post Edited (dmger14) : 11/5/2021 2:21:23 PM (GMT-6)