Update - had two bms today that were both large volume & appeared normal. I last went three days ago, so feel like I was making up for not going in so long.
I just got a call from the PA who got the results of the pathology and spoke with the gastroentetologist. She said he didn’t mean to put Zeposia on the list of treatments. She said the pathology came back as mild UC (though visually it looked moderate) & that he agrees with the mesalamine oral & enemas approach. So she put in for those and I hope to pick them up this afternoon. She said over time if I’m in remission, I could cut back on the level of mesalamine, but the fear is if I go off of mesalamine & get a flare, that it might not work next time & I’d be stepped up into other medications. I told her I was in full remission for almost the entire 5 1/2 years with no medication and hoped to be able to stop again at some point. She said I could try stopping mesalamine at some point down the line & it’s iffy if I’d flare as a result. In my message box, the gastroenterologist reiterated mild UC on left side and that mesaliamine will be used for treatment. Then it says we'll monitor for improvement, and "if none, then may require strong immune suppressive medication."
So my question to you all is if, assuming all goes well over the next month or so of full 4 pill mesalamine with enemas, do you think I should stay on a lower dose of mesalamine indefinitely in the long-term, or after some time of low dose mesalamine, can I try to stop and rely on diet - probiotics & prebiotics, apple cider vinegar, etc. to keep another flare from occurring? I know everyone responds different but just trying to gauge opinions.
Post Edited (dmger14) : 11/10/2021 10:52:08 AM (GMT-7)