Posted 11/6/2021 6:56 AM (GMT -7)
I've been on mesalazine (mesalamine) type meds daily (well I slack off sometimes when I'm in remission) since I was diagnosed in 2004, so approx 17 years now. Personally I haven't had any side effects from taking it, other than not being able to take 4 tablets of Mezavant a day (that makes me vomit), and sometimes a headache if I miss a dose. I stick to a slightly lower dose of 2 tablets while in remission and 3 while flared up, along with suppositories and enemas when required.
I took Humira for 6 years without side effects, other than my hair regenerating quickly (as I've said before, I thought I was losing my hair at first but it was falling out and growing back more quickly). I'd have happily continued with Humira but sadly it failed, ie it stopped keeping me in remission.
I try to eat a healthy anti-inflammatory diet, and take supplements that support overall immune system and gut health. I have to change my diet when I'm flaring (I tend to reduce insoluble fibre but continue to eat soluble fibre, stick to my safe foods, and eat nutrient rich, calorie dense foods to take in smaller quantities), but I still try to avoid heavily processed junk food, because it's harder to absorb nutrients during a flare up.
Your Gastro is probably making it clear that there's no evidence that diet causes UC, to encourage you to continue to take the medication. However I think it would be misguided of them to suggest that diet has no impact on overall health and wellbeing.
There's a lot of emerging evidence of the role of the gut microbiome on overall health. In my view it makes sense to eat a healthy diet if you have an auto-immune disease.