Zero antibodies to Covid vaccines

Hey guys,

I had the 2 Pfizer's at the beginning of the year. Antibody test showed 0 antibodies after those vaccines. I had the Moderna over 4 weeks ago. We tested my antibodies again.... And it's still at 0. Like I never even had any darn shots. I am so freaking out. And they said I can't have any more vaccines for 6 months!

Anybody know anything about this or have this happen?

I've asked them to retest them again. This can not be right. Any suggestions?

Clo

Straydog,

Thank you for responding. I have read some of the same things. My infectious disease doctor here is working with the Mayo Clinic and he also was working with Pfizer during the vaccine trials. He's the one that has been having several tests ran to check my antibody levels. He is hopeful that my t cells will help if I should get Covid 19...but he said with this disease and zero antibodies he is unsure how I will do. His large practice specializes in immune compromised people and infectious diseases. He said that so far I am the only person he has seen that has had a zero response level to the tests. He personally has seen low levels of antibodies but not zero. The other doctors that have seen zero responders that have caught Covid 19 (with similar comorbidities)have indicated the majority of those cases did not end well. So I wanted to check here to see if there was anyone else. I really dislike being the odd man out concerning vaccine response. I feel like my family and I will never get our lives back. My husband and I are following his directives but sometimes we would really like to see our other family members without a closed window being between us. I just want to hug my kids again...spend time with my grandkids. I want everyone to mask up and get the darn vaccines.

UTSW... I did get in to see them. They said that with my issues my current is the best of the best and they work with him on complex cases like mine. They will take me but they wanted me to know they would be consulting with him. Why change if I am going to get the same thing... And with yet another layer of interaction I fear the response time will be the same or longer.

Today I feel like Crohn's is winning. I just want to stop all these meds and yet know that I can not. Yesterday I was in the bathroom all day because I dared to eat biscuits and gravy. And it was glutton free and almond milk... It wasn't even real biscuits and gravy. If I'd known I was going to suffer I would have eaten the real stuff. Lol..

Thanks again for responding.

Clo

Hang in there, Clo. These surges have to die down eventually and it will be safer for you. Amazing that you had zero antibodies after 3 shots. Your body must have just ignored the vaccines. Hopefully it would ignore Covid too, but keep trying to stay as safe as you can be.

It does get really tiresome though. I have some antibodies, but based on what I have seen people report in the UNC study I don't have a lot so I am super careful and stay safe at home most of the time. I really want to hang out with my vaccinated friends, but they are living pretty freely these days and I don't feel comfortable knowing they are likely coming into contact with people who have Covid.

Thanks all

I went shopping thru all my doctor's today... Still trying for that 4th shot. They all said no. I have to wait 6 months. I'll try again in a couple of weeks. I did talk to some about Evusheld. It's usage will be very limited and controlled. You can not get it from their office unless you have a positive test taken at his office. PCP sorta chuckled and said he could not believe that there were little hoarders out there that were perfectly healthy that wanted the pills for a just in case scenario when they are going to be a scarce resource for the next months and someone who actually had Covid might need them. It made me feel alittle guilty.

So his game plan with me is for me to test myself when I feel ill, see him, get tested, have a positive test result thru his office and then I can have the meds if they have any. He wants to see the test results from his office.

CRS, Infectious Disease, nephrologist and Rheumatologist all have the same protocol. They all told me to keep doing what I have been doing since 2020 and I should be fine--although I might want to change my mask to a N95 because of the new variant.

Thanks all for your responses. I appreciate you all.

Clo

I am pretty sure Evushield is for prevention (for 6 months) and paxlovid (the Pfizer pills) are in case you come down with COVID. It seems Doctors are very confused. I follow a scientist who posts all of the studies and then explains them and that is what they studies/info she posts state. There is also 1 monoclonal antibody that still works against Omicron.

@Clo, does any of your drs have a patient portal available? If so, you may get a better response by emailing them about Evushield availability. I suspect your ID will have access to it before your other drs. I would ask to be put on their list if the drs say they do not have it yet. Each state is being allotted a certain amount until the production gets ramped up.

Thanks for the great ideas all.

Today I did speak to PCP who referred me to IFD. IFD said they are notifying people when they are eligible for Evusheld. They are giving to first responders first. Then depending on your health/disease/if you can't isolate/antibody levels they will decide when you can come in. They told me to expect quite a delay and to keep masking up and isolating. Apparently my IFD is swamped with patients in the hospital with Covid. It sounded like the majority of them had Omicron. (But I thought Omicron was milder than Delta??)

So you know I had to ask about the pills next. Nope. They do not have these yet. I did not ask if the pills are available if you go into the hospital. They will not even write a prescription unless you test positive for Covid.

Next will call manufacturer.

Anyone else notice that it seems as though the immune compromised have to hunt down meds and have a harder time finding their way thru it all?

Will let you know how it goes. I am officially hiding at home....

Clo

Poopydoop,

Thanks. I will keep that in mind. I am still unable to find anything and still hiding at home. If I catch it I'll be on here posting for more ideas.

Tomorrow is Remicade infusion day. Some lady went to get her infusion over a week ago, 39 minutes in she told them she "just got" a positive Covid test result. The infusion office shut down the office for a cleaning. They had 1 nurse test positive for Covid after 10 days. They had already opened back up--so unsure where she got it. The nurse was asymptomatic. She didn't know until they tested her on her way into the office. And now people are sorta throwing up their arms and saying.. well we are all gonna get it.... And their stance has shifted alittle. This 2nd scare, they cleaned the office but are not quarantining...☹️

If I didn't really need this infusion I would put it off again... But am already at the 7 week mark and I can tell it's time.

Say a prayer and cross your fingers for me!
Clo

Keep your mask on while there, Clo. Have you upgraded your mask to an N95 or KN95 and have it fitting really tight? If not, try to find some. Those masks protect us more since so many don't wear any at all. It really bothers me when I hear talking heads on TV say we're all gonna get it as if it's inevitable. To me it's like no one cares about high risk people. Covid is crazy high here ... not just the number of cases, but hospitals are overwhelmed. They say that it's about 80-90% unvaxxed people who are being hospitalized for Covid. I keep thinking that should soon be winding down because people will either be vaccinated or will have had Covid so maybe health care workers can get a break. For now I just stay home unless it's for infusions or to pick up groceries.

Venting... Beware... Venting....

My nurse got sick on Monday. I found out because I am paranoid and I called in and asked them if anyone had been there since the infusion patient with Covid and they told me. I asked them to inform me if anyone else got sick.

Today I went in.... Receptionist was the same..... Took me back.. new nurse. Weighed in and saw no one at the nurses desk... (That was my sign... I shoulda ran out the door then) Another new nurse came in and started my premeds and port... She kept changing the subject about why there were so many new people there. (4 nurses from another office are there subbing in) So after the IV benedryl... I slurred sssshhhhóo wheres everyone? I sounded like a drunk, my legs wouldn't work, the darn room was spinning and only then did she tell me everyone in the office tested positive for freaking Covid except the receptionist that morning and they were sent home before they entered the office space. The rooms had been cleaned the night before so we should be ok. The CDC recommends that asymptomatic nurses can still work... But out of an abundance of caution they did send their people home. All I could do was lay there cursing like a sailor....but thankfully it was so slurred they could not understand anything I had said. Then in the middle of my infusion the receptionist got up and left for the remainder of the day. She had started coughing and looked pretty bad about 3 hours after I got there. ,(I was in the room behind her and right by the nurses station.) So now I am totally freaking out.

I wore my mask but I did have to take it off twice for Tylenol. I feel like I wasn't proactive enough. I should have demanded answers before they started the port... I am upset with myself because I knew there was something off but I was so desperate for my infusion I ignored my gut feeling.

Then tonight one of the ladies in my support group called to tell me her and her husband have had Covid for 6 to 8 weeks and they are still sick/can't breath and are still testing positive. She's like me... They don't go out unless they have to.... She has no idea where she caught it. Then she uttered those words Everyone's gonna catch it--and I had to hang up before I said something.

I hate Covid. Loathe it.....

darn clo! What a nightmare! I guess your big worry is that receptionist going home. They’ve said covid doesn’t really live on surfaces didn’t they? Who knows tho. But hopefully the cleaning was stringent enough to cover that aspect.

There is a drive thru testing site by my house that never has had anyone there. One car every once in a while. Yesterday there were 20-30 cars lined up when I went by at 2:30 and still that many at 4. It’s crazy out there!

They will have tested for S antibodies...she is under an infectious disease dr so one presumes they know what they're doing.

What about j&j vaccine that doesn’t use mRNA method?

So sorry you’re still having to isolate. I just finished reading an article about the high rates of depression in seniors due to covid isolation. I know I’m starting to feel it and I’m not having to isolate that much. Just have the covid fatigue. I hardly remember what “normal” was.