I don't think people are harassing VJ, VJ is the one saying "mind your own business". That is very rude, and he/she can use the ignore button. A forum is a place for opinions. If you don't want people to respond, don't post!!! I personally find the negativity toward ostomies to be overwhelmingly insulting. Firstly, do you know anything about surgery? Many people don't have ostomies, but when you say you WOULD NEVER get one, you're minimizing the illness. You can't control everything. VJ sounds misinformed about surgery, which I've stated before is NOT something to take lightly. VJ is very judgemental and bullies people with ostomies. People with ostomies are "acting like they are okay" and "i'd rather be dead than have an ostomy". Sorry, that's insulting. Plenty of people live well with an ostomy.
A mod has already told people to be respectful, and ANOTHER mod (one of the usual suspects) shows up to judge me personally. Ok! Well I'm responding now, so I better not get punished for this, because I already stopped participating, but now I'm being drawn in YET AGAIN by someone calling me out. A mod no less.
My god, where to begin with this non-sense.
I couldn't give two hoots if people believe in modern medicine or not, or surgery or not. I came here to give my opinion and how it has worked out for me, which is IT DIDN'T. Modern medicine was totally dodgy for me and others I know, some of whom are close friends with IBD. So many side effects, so many treatment failures, not to mention added pain and suffering. Since it didn't work out for me, I have to look at treatment alternatives. But don't believe me, look at the actual drug data on things like biologics. Average remission rate is 30% or less.
It's laughable that you try to paint a narrative of alternative thinkers as, "Who knows who these people could be? Do they even have IBD? Have they had a proper diagnosis?" Are you for real? Trying to create those kinds of divisions on this forum? The same could be said for the Usual Suspects who show up in every alternative thread to bash anyone who thinks outside of the box. Who are you? Do you work for big pharma? How do I know your surgery story is true NSSG? Do you really want to go down this petty road? You make the choice. If you want to do the mud slinging thing, I'll be right there!
Firstly, YES I know a lot about
surgery. I won't qualify myself. As I said before, I didn't make my decision against an ostomy lightly. I owe you ZERO explanation of my history to justify how and why. How dare you say that I'm a bully for having a different view on surgery? How dare you call me uninformed, and a liar? I have been attending an IBD support group for THREE YEARS in person. There are ostomy patients in there of all kinds, some of whom YES are clearly in denial. Whenever you're in remission, they are the first to question if it's real, if you're sure, if you're just delusional. If they can't create doubt there, then they make sure you know that your remission victory could be short lived, that you WILL flare eventually. It's always the ostomy folks doing that, not the people on biologics or whatever else. Ostomy folks love to prognosticate about
illness because they had to lose big. And I'm sorry for that, I really am, not honestly? BACK OFF. And of course lots of people live just fine with ostomies. Anyone can make that choice. But it's like... the OP asks for people's opinions on ostomies, and I gave my (informed btw) opinion, and you come here to paint me as some evil villain who is ignorant about
surgery and "maybe doesn't even have IBD for real, who knows?" Are you kidding me????
And no, I will NEVER get an ostomy. It is in all my legal documents. If a doctor violates that they will be sued to kingdom come. I would rather die than have one. And the more people like YOU try to belittle me over my MEDICAL CHOICE, the more hostile I am going to get. But I am not the problem here. YOU are. YOU are every time you show up to bully people who are against ostomies for THEMSELVES. YOU are any time you or someone like you shows up to denigrate my sincere efforts to get well when all modern medicine has FAILED. I like patient-directed care, and if that bothers you, then oh well! I have a right to the kind of care that I think I need, I have a right to consult the professionals I want, and I have the right to refuse any kind of care I want, even if it kills me. THAT IS MY SOVEREIGN CHOICE.
I am not a bully. I am REACTING to bullies. A victim of bullying can't be a bully. If you don't like seeing diverse opinions on a subject, then maybe you should take your own advice and stop posting here! HealingWell has a big problem, the world wide web of IBD knows it. CrohnsForum knows it. Everyone has talked about
it. The same gang of people here roam the threads correcting all alternative attempts with their standardized views and display incredible intolerance. I'm sorry that alternatives didn't work for you ok? That doesn't mean they can't work for others. It DEFINITELY doesn't mean you should be correcting people and telling scare stores about
ONE person dying of UC that nobody even knows about
. Death by UC is rare across the board, very rare.
How dare you? Honestly. How dare you. The nerve. Well guess what? I am NOT going away. I get to share my knowledge and experience equally like anyone else. Accept it or not, I don't care, but DON'T show up to bully and intimidate. I will respond in kind EVERY TIME.
Post Edited (VanJordan) : 1/5/2022 1:31:33 AM (GMT-7)