I know you think the konsyl is helping but I would try not taking for a few days and see if anything changes.
I recently quit taking a fiber supplement that I swore was working, and my bowel movements were cut in half. I was mind blown... I would've bet anything they were helping me.
Thanks. So I experimented with no Konsyl before bed. Just the dose around 10 am and the one around 4 pm. No good. It really didn’t impact the night issues but it did impact the next day…I was much more brown/watery throughout the next morning and early afternoon (yesterday). Seems the night dose affects the next morning for me a lot.
So, yesterday, I got back on the Konsyl schedule of around 9 am, then 4 pm, then 11pm.
I’ve got my infusion this Thursday. Then my GI appointment next Wednesday.
I’m going 5 to 7 times a day. Then another probably 5 times throughout the night.
Brown/loose/watery, then sometimes some pink on the toilet paper with a little bit of mucus….most of the time the toilet paper is just a little of the brown. Sometimes i do soft stools brown. Sometimes some mild tennemus. Sometimes some urgency…a quick walk to get in there to the toilet or the feeling like I might poop my pants.
Sigh. I know it could be a lot worse. The fact that I’m not seeing blood. I know that’s huge.
I’m just exhausted with the pattern I’m now stuck in.
I woke up this morning with “the blues”…feeling sorry for myself. Not being able to sleep through the night for weeks now. It’s so depressing. I know it’s not true…but I have this feeling…”I’ll never get a good nights sleep ever again”. Sigh.
I’ll try texting my GI in the morning again (Monday morning). I’ll text him again with what’s been going on. I’ll ask for a test or SOME INPUT before Thursday’s infusion. Sadly, I’m not holding out much hope I’ll hear back from him.
I’ve heard ALL the doctors in my area are overwhelmed here in South Carolina. And the hospitals they work for are having them do double duty in the hospital helping with all the Covid patients. They are ALL overwhelmed and exhausted …That the two hospitals here in my town are both exploding with the newest variant Covid patients and they are way understaffed on nurses and doctors. So it’s this massive nightmare for the health care community here.
I could be wrong, but I feel like my texts of my situation to him, if he even does read them, it’s just not that big of a deal, because there are so many people here in this area with a lot worse things going on. So I just get ignored.
He knows I’m getting the infusion Thursday. He knows I’m coming in the following week. He knows I’m flaring but there’s no blood.
You might say. “You need to get another GI”. Well, I’m on my second one now since I was diagnosed in 2016. And this guy is ten times better than the first guy. At least when I do see him I get a full appointment without getting the feeling like I’m a bother. He will talk with me until we have covered everything. My first GI was awful. In my appointments he always made me feel like he had five to ten minutes or so for me and we better talk fast because he’s got another ten people waiting. I used to bring a note pad in with me so I wouldn’t forget to talk about
certain things with him, because that feeling of being rushed, I couldn’t think straight and I’d forget to ask about
stuff. Just awful.
Prior to the pandemic this “new” GI would always text me back the same day.
I blame Covid for crushing my relationship with this guy. Crushing my UC care. Probably everyone else with IBD in this area too. This Covid stuff sucks.
Post Edited (Rusty Barr) : 1/9/2022 6:40:16 AM (GMT-7)