Left side severe and rectum

therearemiracles

Veteran Member

Joined : Dec 2006

Posts : 3802

Posted 1/5/2022 9:28 AM (GMT -7)

They said no to taking out colon , up all my medication, start steroids. Narrowing of rectum. Also esophagus.
They stretched my esophagus and put me on protonix.
That was the worst prep, gave me cramps in legs and panic attacks! bad attacks!

poopydoop

Veteran Member

Joined : Dec 2018

Posts : 1639

Posted 1/5/2022 9:33 AM (GMT -7)

sorry to hear, hope things calm down now. fingers crossed the new treatment regime will help you feel better.

therearemiracles

Veteran Member

Joined : Dec 2006

Posts : 3802

Posted 1/5/2022 9:36 AM (GMT -7)

Heather you are so amazing on this forum , so knowledgeable and helpful ! You are dedicated to helping others. Thank you for helping me over the years!!!!

quincy

Elite Member

Joined : May 2003

Posts : 33341

Posted 1/5/2022 11:03 AM (GMT -7)

☺ thank you for your kind words and support. I'm relieved for you that the process is done.

...why to not removing your colon if you're suffering the way you've been endlessly for so long?
Your esophageal strictures...hopefully, the stretching and protonix will help a lot with the upper symptoms.
What's prescribed for UC symptoms?

q

therearemiracles

Veteran Member

Joined : Dec 2006

Posts : 3802

Posted 1/5/2022 2:36 PM (GMT -7)

The LDN was helping so much. It gave me stomach pains but I my inflammation was non existent in the way I felt. I’m going to transdermal cream starting tomorrow and see how I do.
I’m not ready for a bag it doesn’t sound right , right now.

clo2014

Veteran Member

Joined : Feb 2015

Posts : 1533

Posted 1/5/2022 2:40 PM (GMT -7)

Darn. Sorry to hear that it was severe...but..
Glad to read that you have received your results and have a game plan in place. I knew you were having issues and struggling with things--I just had hoped it wouldnt be severe.

Aren't they trying to get you on Entyvio? Did the doctor say if that will help with your esophagus?

Clo

Post Edited (clo2014) : 1/5/2022 2:43:51 PM (GMT-7)

therearemiracles

Veteran Member

Joined : Dec 2006

Posts : 3802

Posted 1/6/2022 5:22 AM (GMT -7)

I tried all biologics
So far the best is LDN but stopped a month ago it hurts my stomach , starting the cream today

clo2014

Veteran Member

Joined : Feb 2015

Posts : 1533

Posted 1/8/2022 6:20 PM (GMT -7)

Checking in here too. How's the cream going?

Clo

therearemiracles

Veteran Member

Joined : Dec 2006

Posts : 3802

Posted 1/9/2022 2:45 AM (GMT -7)

Only day two, no change
and had to start protonix too for the inflammation in esophagus.

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