Does anyone have experience of having normal enough looking BMs, normal CRP only to have a facel calproctein test done and find a really high reading that was correctly telling you that something was indeed going on in either intestine or GI tract?
Yes, this happens to me a lot, because my CRP barely rises even when I'm being told I'm about
to have my bowel removed (bullet dodged 3 times now). What tended to happen is that I'd have increased gas, with that distinctive UC smell, some pain, and yellower, narrower stool, but no diarrhoea or bleeding, so I'd ignore this and carry on, then discover my faecal calprotectin had risen (approx 200 to 600).
When my faecal calprotectin is in the thousands I have obvious symptoms of flaring (frequent diarrhoea etc).
Despite having UC for 18 years now, I've only just come to the obvious conclusion that I shouldn't ignore these very early warning signs! (although I had a bad experience with a UC nurse recently who said if I don't have diarrhoea I'm not flaring....which isn't actually true for me....I was once hospitalised without diarrhoea....possibly because I've got non-continuous UC, including a caecal patch, which means I can be ill but the stool can still form further down the bowel sometimes).